I try to remind myself there are "worse" things, but what a rude, horrible thing to say to someone. I would be super angry too.
Overall I really believe that Crohn's is over-generalized. I have a friend who said he wanted to learn more about
the disease so he went online. He'd thought enough to choose the Mayo Clinic site to read from, as a reliable source. But, how simple can the disease sound!? "D, pain, fever..." Most people think, "what's so bad about
going to the bathroom a lot?" but, they really just don't get it. I know we talk about
that a lot, but it is so frustrating. I pointed him to the CCFA site and the forum on there. (Didn't want to share all these thoughts... ;-) My identity is not all that hard to pick if someone knew I posted here)
How in the world can we possibly help people understand that it's more than "going to the bathroom a lot?" When we compare bathroom time to giving birth, doesn't that tip someone off that's it means *more*?? I mean, really... If they had the flu years on end... When going to the bathroom means excruciating pain, the fevers are constant, the fatigue makes it hard to get out of bed every day, but the second we wake (a lot of us) have to *jump* out of bed to run to the bathroom... I had my step-mom say about
driving somewhere in the morning, "We can stop anytime you need..." (I was trying to say we had to leave later in the day) They don't GET urgency. I mean, when I realize I have to go, there is *not* time to get to the next exit, find a gas station and walk to the toilet.
It seems to me that, even on the Mayo Clinic site, this disease is *way* over-generalized in the way it's described!
So sorry you had to be submitted to the callous nurse! And, MAG, that is *so* offensive. Maybe that nurse should have been reported! ;-)
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide suppositories 3mg/daily, Cimzia
Dx Osteoporosis 10/08 almost done with my 2 years of Forteo 1/27/09 - 1/27/11!!