Before my diagnosis I was one sick puppy. Severe abdominal pain, drenching night sweats, and bloody diarrhea 10 to 15 times a day. I was losing 5 pounds a week for over 50 pounds. It was the first time since high school that I would get on a scale and hope to gain weight, or at least stop losing it. Sometimes IBD can include other systemic manifestations such as serious eye inflammation, skin lesions, and crippling arthritis. I had all of these. My blood counts were so fouled up that I was referred to an oncologist to check for lymphoma.
I had no idea what hit me until I was finally diagnosed with IBD. At first my GI tried to prescribe low level treatments which would agree with me. For some people Asacol works great and sustains them for years, but for me 5-ASAs such as Colazal and later Asacol caused nausea, severe flu-like symptoms, and pleurisy. I would even suffer a fit of nausea after inserting a Canasa suppository.
My GI then prescribed 40 mg of prednisone. I knew my flare had to end but I was reluctant to take pred. I have diabetes in my immediate family and my fasting glucose level was already well into the prediabetic range. But I was about
to take the pred even though I was afraid that it would tip me into diabetes. I felt I had no choice .
Luckily I also developed a painful perianal abscess. I say luckily because my doctor then prescribed a three week course of Flagyl for it that jump-started me out of my flare and into remission. Shortly after my flare ended all of my symptoms including skin lesions and arthritis quickly disappeared. My blood work was back to normal and a later scope showed my intestines were clean (so far).
If I ever regress back into a flare I will go back to Flagyl. Hopefully it will work again for a flare but I don’t believe antibiotics should be taken every day for maintenance. Prednisone is also not recommended for long term maintenance. Humira? I don’t think so.
For the past 10 months I felt that my IBD could be controlled by watching my diet and being vigilant for any foods that seem to trigger symptoms. I began supplementing with probiotics when taking the Flagyl and have since added other supplements that also seem to help. One side benefit from monitoring my diet and food intake is that now my fasting blood sugar has dropped from prediabetic to well within normal.
I would never, ever recommend anyone forgo their meds. If I were not allergic to meds such as Asacol then I would have taken them. IBD can rear its ugly head again at anytime and I know that I am skating on thin ice. But for me I don’t think I had any choice but to pursue the path that I am now on, and I am so glad that I did.
Male/59 DX ulcerative colitis Feb08, possible Crohn's colitis DX Mar10.
No Meds, allergic to Mesalamine. Remission since Mar10. Food journal instead of SCD. Psyllium seed + VSL3 especially helpful.
Boswellia, E. Coli Nissle (Mutaflor), turmeric, fish oil, S. Boulardii, OLE, resveratrol, multivitamin, extra D3, K2, C, high gamma E, magnesium, DGL, phos choline, glutamine. Lots of vegetables & fruit (but no plums), no soda, no HFCS, no trans fat, no shellfish, tea instead of coffee, watch gluten, few processed foods, no carrageenan. Nature created all of the locks, therefore Nature has all of the keys
Post Edited (BabeintheWoods) : 1/19/2011 7:41:10 AM (GMT-7)