Sounds like they changed the format more than I thought! I had infusions at day 0, 4,7 14 and it sounds like you're having them every 4 weeks? But, my dose was likely different than you are receiving. I don't know what dose I got, they won't tell me. I still have paperwork somewhere and could look up with the high and low doses were (randomized) if you know the dose of your
open label. Might be interesting to see what they've how they've changed things in the re-design of the trial.
I still have all my lab results from the trial, though. Looks like my CRP came down to half at 2 weeks. My WBC dropped from 18 to 13 at week 2. I did not go into a full remission, but healed 50-60%. So... the activity came back after a month or so. I felt like I really needed more but maybe I got the low dose, who knows. I may never know! (Beyond lab results, etc...)
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide suppositories 3mg/daily, Cimzia
Dx Osteoporosis 10/08 almost done with my 2 years of Forteo 1/27/09 - 1/27/11!!