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New Member Mickey123 - Intestinal endo

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Crohn's Disease
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Nanners
Elite Member
Joined : Apr 2005
Posts : 14996
Posted 2/6/2011 10:02 AM (GMT -7)
Yes, I had this diagnosis. But unfortunately it was almost too late. My PCP kept ignoring my complaints. When I finally went to the ER I had to have emergency surgery. 80% of my colon was necrotic. the endometriosis had strangled my colon and also attached to other organs. I had to have many, many surgeries over 3 years. I went through all kinds of complications and now have an ostomy. I went through alot of pain which I feel could have been avoided if my complaints hadn't been ignored. So, if you know you have this condition my advise would be to fight for tests to avoid the horror that I went through. I hope that this info can help someone else avoid complications.

*I made you a new post, so you could get more responses.  You posted to a post that was over 3 years old and members tend to avoid these, thinking they already responded*

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Nanners
Elite Member
Joined : Apr 2005
Posts : 14996
Posted 2/6/2011 10:04 AM (GMT -7)
Message from Ivy6:

Welcome, Mickey!!
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SaladShooter
Regular Member
Joined : Jan 2011
Posts : 82
Posted 2/6/2011 10:11 AM (GMT -7)
Mickey, that's a shame. I'm sorry you had to deal with it when no one was listening. That does tend to happen, unfortunately. I hope you're doing well now.
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kazbern
Veteran Member
Joined : May 2010
Posts : 8384
Posted 2/6/2011 12:21 PM (GMT -7)
I had the opposite experience. My first fertility DR did a pelvic laparoscopy to confirm an endometriosis diagnosis when I was 33. That was his guess based on my description of my pelvic pain. He was dumbstruck when he saw what he described as a "perfectly clean pelvis." I wish he would have thought beyond his specialization, because it took me another 5 years to get an IBD diagnosis, which was the real explanation for my pelvic pain.
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chrisnsteph1022
Veteran Member
Joined : Apr 2003
Posts : 973
Posted 2/6/2011 3:56 PM (GMT -7)
I've had surgery to remove extensive endometriosis. My Crohn's was in remission at the time and they didn't mention anything about it strangling other organs. Guess I was lucky there!
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