I posted this last month detailing how I stumbled on my way and was a product of circumstance more than anything. If I can maintain remission then my allergy to 5-ASAs could be seen as a blessing in disguise, if not then it would be a curse. (Although LDN sounds promising).
Diet modification seems to work for maintaining remission but I am not sure if it is effective for ending a flare. As the link above shows for me it was Flagyl, for others it may have to be pred or something.
Diet is numero uno. It doesn’t matter how many supplements I am taking, if I am eating triggering foods then I will have symptoms. I could be perfectly healthy for weeks but if I do something stupid like Starbucks hot chocolate or Alaskan King crab for lunch, I will have frequent diarrhea, sometimes bloody, that evening. I have a dozen or so target foods I need to avoid. Some are SCD legal. The only way to know is by trial and error. If I were advising someone I would suggest starting by avoiding gluten, dairy, and high fructose corn syrup. Those are the usual suspects and you should know in a couple of days if they trigger anything bad.
I am sure that continuing to indulge in the forbidden dozen foods will most certainly place me back into Flarestown. But fortunately one dietary screw-up does not a flare make. What I like about
supplements is that they really help to speed up the recovery. (As long as I can stay away from the problem food.)
The most effective supplement (for me) is probiotics. VSL3DS is pricey but it is by prescript
ion so for some health insurance can help pay for the cost. I also like taking a 2nd probiotic with it. I rotate with S. Boulardii, Mutaflor, or any of the many brands found in the refrigerator case in the health food store. You can never take too many probiotics. Probiotics do not colonize in your gut so you need to replenish them every day. I don’t want to leave any room in my gut for the bad guys to take over again.
Soluble fiber such as Metamucil also works for me. I prefer powdered psyllium seed. When I mix it with VSL3 it is my STOPPER: it quickly gets me back to normal if I eat something bad.
I like to add a capsule or two a day of curcumin and boswellia. Rigorous double-blind studies have shown that these natural herbs, as well as the probiotics mentioned above, are just as effective as mesalamines for maintaining remission. I take a little more when I start to feel symptoms begin to creep up again. Since I cannot tolerate 5-ASAs for maintenance I figure I need all the help I can get.
I have been taking fish oil, vitamin D3 and the other supplements as a general panacea for years before my IBD ever hit me. (Google ’vitamin D cancer’ and you will know what I mean). I noticed that they also have studies backing up their effectiveness for IBD.
One advantage of dietary modification is that my fasting blood glucose levels are no longer in the prediabetic range. And my HDL (good cholesterol) has gone from the low 40’s to the high 50’s.
Male/59 DX ulcerative colitis Feb08, possible Crohn's colitis DX Mar10.
No Meds, allergic to Mesalamine. Remission since Mar10. Food journal instead of SCD. Psyllium seed + VSL3 especially helpful.
Boswellia, E. Coli Nissle (Mutaflor), turmeric, fish oil, S. Boulardii, OLE, resveratrol, multivitamin, extra D3, K2, C, high gamma E, magnesium, phos choline, glutamine. Lots of vegetables & fruit (but no plums), no soda, no HFCS, no trans fat, no shellfish, tea instead of coffee, watch gluten, few processed foods, no carrageenan. Nature created all of the locks, therefore Nature has all of the keys
Post Edited (BabeintheWoods) : 2/11/2011 6:47:37 AM (GMT-7)