It looks like you got a lot of great suggestions in this thread! Dang, Lupus is a serious side effect. Surgery rarely seems to be a permanent solution- my guess is when you discuss it with your doc, s/he will probably say you need to take maintenance meds after surgery, anyway. Can you get by with less toxic meds after surgery, like Asacol? Who knows? I'd be interested in hearing what your doc thinks - most docs I've met would just shrug their shoulders.
You can find out more about SCD at www.breakingtheviciouscycle.info We think it helped my daughter get the most mileage out of her meds. It is strict, but well balanced in terms of nutrients...like meds, it doesn't work for everybody and is tough to follow, but some patients have found it works when all else fails. If it works, then it is a diet you would follow for life.
My daughter has used Entocort, at a small dosage combined with a modified version of the SCD diet (she cheated by eating potatoes and rice) to effectively control her symptoms for years, but because you mentioned the colon, I'm assuming Entocort would not work for you.
She also used LDN combined with modified SCD to taper successfully off Entocort. LDN seems to help her avoid getting sick even with the normal stuff - colds, flu. She decided to go strict SCD since Nov 2011, to try to get more mileage out of LDN...she has no symptoms, but we'd like to see slightly better lab results in CRP and sed rate. (Btw, since she has been on SCD, she has ceased to have the upper respiratory bacterial infections that plagued her most of her life.)
As I recall, a former moderator said helmith (worm) therapy helped her...and you will probably be able to easily find at least one long helminth thread on HW.