crohns and uncontrollable weight gain

have you gained weight form crohns?
20kg - 40.7%
10kg - 3.7%
5kg - 3.7%
same - 7.4%
lost weight - 44.4%

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New Member

Date Joined Feb 2011
Total Posts : 2
   Posted 2/21/2011 10:38 PM (GMT -7)   
i gain weight if i eat over 800 calories at 165cm and 60 kg..... i am quite a chubby full time dancer
my meds are azathioprene(imnuran) and salofalk
and idea why or how?
does anyone else feel my pain

Veteran Member

Date Joined Jan 2010
Total Posts : 1120
   Posted 2/22/2011 5:45 AM (GMT -7)   
I wonder if you can let us know where you got the chart, it is very interesting.
I am sorry but I can not comment about weight gain. It is not my experience but we have lots to feel uncomfortable about, we do not need additional weight, have to buy new clothes....
Take care
Pentasa (1,500 per day for the last 4 months), Vit D and B complex, fish oil and SCD vit. Entocort (9 mg). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

Regular Member

Date Joined Feb 2010
Total Posts : 406
   Posted 2/22/2011 12:01 PM (GMT -7)   
I have been steadily gaining weight while trying to cut calories.. I can't exercise much but its really adding up..I feel your pain ..
40 to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Remicade infusions Prednisone, Colestipol, Nexium, Propranolol, Vivelle patch.
Tried Imuran & MTX

Veteran Member

Date Joined May 2010
Total Posts : 8384
   Posted 2/22/2011 1:07 PM (GMT -7)   
The endocrinology of weight gain is really complicated! If you are eating so few calories and still not able to lose weight could it be that your body is reacting to a perceived starvation diet? I personally like the Weight Watcher's strategy of eating enough but just a little less than what you need. For most women that's going to be about 1200 to 1500 calories per day to lose a little bit of weight every week.
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 2/22/2011 1:52 PM (GMT -7)   
Don't know if my weight gain has been from CD per say, but over the past 5 years I've gained weight. I hit 30 and my metabolism and energy have gone downhill. I've also had a few bursts of pred, and I don't seem to lose the pred weight like some people here do. On top of that, I'm on antidepressants, which can lead to weight loss.

Add to that the fact that any time I try to "diet" I end up in the hospital with an obstruction, and I'm just bound to be overweight. My body doesn't seem to like fiber, and having fiber, whether it's from whole veggies or even pureed (which I tried, and ended up in the ER) is not good!

It's frustrating. I'd love to wake up tomorrow and be 30 pounds lighter!

Crohn's since 1997
Surgeries: 2 Bowel resections, appendix & gallbladder removed
Pulmonary Emboli & Pneumonia 2009
Currently on Humira, Omeprazole, Prozac, Seroquel, Calcium, Vit D, Aspirin, B12 shots

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 2/22/2011 3:04 PM (GMT -7)   
I find it really frustrating. While I am by no means overweight at this point, my doctors tend to judge a lot by weight loss. If I maintain my weight then I can't possibly be all that sick. However, with my partial blockage I really haven't lost much weight. I am eating mainly full liquids made with lactaid milk and lactaid half and half for extra nutrition. I am adding extra egg yolks to all of my puddings and custards, putting a little smear of butter on my saltines so I am not really losing weight even though I am not eating much. I am pretty good at making sure I eek out every opportunity for extra calorie intake. I seem to be caught between a rock and a hard place. If I let my nutrition slip, my doctors will really take notice and maybe work a little faster to get things moving, but when/if I have to have surgery I will be in worse shape for recovery.

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 2/22/2011 8:52 PM (GMT -7)   
I've struggled with weight gain since my resection last year. Prior to that, I was maintaining but slightly overweight. Now I'm steadily gaining without much explanation.
My GI said most of his patients have the opposite problem and he's not sure why I'm gaining. I wonder if my system is processing food differently now that it's been reworked but I'm no doctor. =)
It's very frustrating. I'm going to start a more limited diet and food journal for awhile and see what happens.

New Member

Date Joined Apr 2008
Total Posts : 1
   Posted 3/3/2011 2:51 PM (GMT -7)   
I've no idea how much weight I've put on but I've gone up 3 dress sizes since I was put on some sort of steroid (they tried me on that many, I can't remember the names of them) about 3 years ago. I couldn't stop eating! I thought it was quite funny at the time considering I could barley keep down a meal. Since then, I've been operated on and kind of got my life back on track. I've been working at the gym, joined a kick boxing class - and I haven't lost a pound! My body was quick enough to put the weight on but it really doesn't want shift it!

I definately feel your pain!!!

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 3/3/2011 3:37 PM (GMT -7)   
I don't have crohns, but i have other AI diseases and several other health issues and had a terrible time with weight gain. I don't know if you are on any type of maintenance steroids but for me that led to being diabetic. i have no appetite but i have a friend with crohns and she believes i have it because of symptoms. but just terrible ibs and gerd and flares from lupus. it was actually my lung dr that told me to try the south beach diet. (i modified it to my budget and to what i can eat.) like a chrony there is a lot of food i can not digest great urgency issues. : ) I now try to eat every two hours a small snack. i have cut many sugars and carbs out, If we make hamburgers on the grill i cut it in half no bun no ketchup i put tomato on it maybe a bit of mustard. i keep red peppers cut up in fridge. so for a snack i eat that or an apple, i limit my sugar because of other health reasons. since jan 1 i have lost 30 lbs, and i am not trying hard i am just making my metabolism work. by feeding it every two hours small amounts. i even get up in the night and drink a small glass of soy milk. (i get up because of pain but eat to keep my metabolism going) before i just dragged myself in to eat maybe one or two times a day not alot i just no energy ... my met just said hold on to everything. I am not healthy enough to move much. my lung dr told me i can walk 3 times a week 10 minutes. so i decided i would clean my house as hard as i could for 12 minutes set the timer on those days. and sadly and as
embarrassing as it is that is my exercise program..hard part is i really would love to do more..but i am trying to learn to live within my limitations.
keep healhy easy already prepped things so on crappy days it is ready. i keep boiled eggs for protein. i know each crohny has different foods.... don't be so hard on yourselves, (easier said than done) I hope this helps I have been averaging 2-3lbs a week. I am having a bad SLE flare now but i am trying to stick to a schedule. I am not a dr. i do understand the frustration of urgency, weight gain, fatigue and the list goes on... you are all in my thoughts and i wish you only success as silly as 2-3 lbs is it really has given me a bit of encouragement. i want to be down to 210 for my daughters graduation. that is averaging the same loss. in jan i was 272

Regular Member

Date Joined Oct 2010
Total Posts : 321
   Posted 3/3/2011 9:51 PM (GMT -7)   
I lose weight when flaring, and gain it with pred, and then don't lose it again until i flare ;) Here are my stats:

130lbs b4 CD
220 after being sick for years and taking loads of pred and then continued while in remission for 12 years
170 while flaring last year
now back to 220 after pred and feeling well again

Go figure! If I feel good when I am fat, then I'll take fat over feeling sick anyday! lol

Best of luck

DX with Crohns in 1998 at age 20
Experienced stroke, clotting, seizures, internal bleeding, fissures & an abcess requiring surgery in 1998
Started 75mg Imuran shortly after DX (+ vits) then I was in remission for almost 12 years until Feb 2010 when had major flare for 9 mths

NOW: feeling great, whew, other than a few body aches, still taking Imuran (150mg now) & Humira (since Oct 18/10)

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 560
   Posted 3/6/2011 3:24 PM (GMT -7)   
Pred for 30 plus years doesn't do alot for your waistline. I also noticedthat while on Remicade and Humira I gained weight. With the pred it was the trunk of my body but combined the the other my arms are getting larger also. oh yay! I walk my dogs 2 times/day and I try to eat right. Sometimes I wonder if we can loss weight.


Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 3/6/2011 5:29 PM (GMT -7)   
My weight flutuates between 133lbs and 175lbs which even at the highest weight for my height at 6'3 is low according to the charts, but having never been above that weight for 22 years if I get above 175 lbs I feel bloated and flabby. It is hard to maintain a steady weight, people think it must be great to have to eat 4000 calories a day to keep my weight steady but when your appetite goes it is darn hard work.

Steroids luckily make me bulk the weight on quickly and then I hit my maximum and then it tends to stabilise there, maybe moving 7 lbs less in the summer when tend to eat more salads and less comfort food! Other problem is chocolate makes me feel sick, unless oddily I'm on steroids then can eat loads, only time I can.

Not sure what to suggest for those having problems trying to loose weight, my husband is on a version of the atkins diet as he looks at food and puts weight on. He has cut right down on carbs and bread. Has things like quorn (mince, quorn chicken fillets, quorn cornish pasties etc) with loads of veggies or omelette with cheese, peppers, onions. This helped him lose 20 lbs last year and it is easy to cook meals for him and me without having to do separate dishes.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Veteran Member

Date Joined Mar 2005
Total Posts : 1115
   Posted 3/6/2011 8:54 PM (GMT -7)   
I am well aware of the weight gain..It has been from the predisone and high/carb simple sugars which I tolerate diet..I did not think before predisone I could ever have a weight problem, but I am 60 pounds heavier and out of breath!! Predisone was the only thing that worked for me and lead me back to feeling human..I did end up on thyroid medication as well..I feel you pain..
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