I have strictures identified from a CT enteroclysis back in January. I have been flaring since October. The CT scan showed 3 separate narrowed areas in a 30 cm area of my terminal ileum. My GI doctor is trying to avoid/delay surgery for as long as possible, though she believes surgery is "in my future" and that future is likely this year. I have been on a high dose of prednisone (60mg 2 weeks; 50mg 2 weeks) this past month and doing MUCH better. The surgeon is optimistic that a medical treatment plan may continue to work. At the very least, my GI is hopeful the short burst of pred will help me gain some weight and be in a little better condition to recover from a surgery.
I start Humira on Wednesday and will taper off prednisone by 10mg per week. Humira every two weeks, off prednisone by April 6 - then we'll see if I can continue to maintain weight or gain weight (I was about 20 pounds under weight a month ago), and remain pain & symptom free. If I start to have trouble again, then it's time for my first surgery. The surgery plan at this point would be removal of the 30cm of terminal ileum, the ileocecal valve, the first couple inches of colon, and the appendix.
The recovery time periods from my surgeon surprised me. He said that if it can be done laproscopically, I'd be in the hospital for 3-5 days, and back to full activity after 2 weeks. If it requires an open surgery, then (the news/numbers I expected to hear) it's the more common 7 days in the hospital and 4-8 weeks recovery with significant lifting/activity restrictions.
Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14
No surgeries (yet)
Current meds: Pentasa, 6MP, Cipro, Pred,
Also take: monthly B12 injection, Calcium, Multivitamin
Starting Humira in March 2011
Post Edited (clonehead) : 3/10/2011 8:48:28 AM (GMT-7)