I have had Crohns for 30 years now, and a surgery with an ileostomy which was removed after my bowel had a chance to recover. And after the surgery I was on no meds for 8 years without a flare up. Then it came back, as it usually does.
The doctors have me on Predisone, which gives me Kidney stones, they have previously had me on Asacol, Imuran and now they are trying Methotrexate 25 ml /sub /cutaneously on a weekly dosage along with Predisone and Folic Acid.
My concern is I don't like what I am reading about
this MTX, apparently you shouldn't go into the sun in which I am going to CUBA in a few weeks, I have been to the tanning beds and so far no problems, but I have only had the injection twice. I am also concerned about
the hair loss as well and my liver more importantly.
Since being on MTX, I am feeling very fatigued as well. The doctors want to try this before Remicade but I am honestly getting sick of trying all these drugs with little results. They say I have no fistulas or fissures at the moment as they just gave me a CT scan.
I live in a small town and also work at the hospital myself and if I do not want to take the meds they give me they just will not keep me as a patient but I am thinking they should just put me on Remicade as the side effects seems a lot less with better chances for remission.
Can anyone out there tell me their experience with MTX? Does it really work well. I know everyone is different but I am really looking for some further information on this drug from someone who has experienced it.
Any information would be greatly appreciated.
*Gave your post a title*
Post Edited By Moderator (Nanners) : 3/25/2011 1:56:52 PM (GMT-6)