I just had my first resection on 3/22. actually healing quickly - but really missing my ileocecal valve! I had an abcess and what my surgeon described as a big knot of intestines removed. he also said that there was zero signs of active crohns left.. my question:
my GI wants me to get back on humira as soon as possible.. my surgeon says the studies on tnf-alpha blockers after surgery to prevent/delay the disease from coming back are limited and inconclusive.
from the point of view of those of you that have had surgery.. do you think going med free after surgery is a bad idea?
these are serious meds, and i can rationalize using them to improve my quality of life during periods of active disease.. but to use it with no sign of the disease.. and for the rest of my life?(or until a new/better option is available)
would love to hear your experiences..
crohn's terminal ileum - 12 years
entocort 9mg, b12 - stopped humira for abcess.. ileocecectomy 3/22/11
allergies: remicade, imuran, 6-mp, cipro, levaquin