Hi YoungMom and welcome to Healingwell. First off I want you to know that while this is a chronic and incurable bowel disease, it is NOT a death sentence. I have lived with this disease for nearly 36 years and I have been able to live a relatively normal life. Yes, there have been bumps in the road, but still have had a good life.
When first diagnosed is when you generally feel the worst. It takes time to find the right meds and diet for "you". Once you get these things figured out you are better able to control the Crohns. I have been at the same job for over 21 years, have 3 grown adult daughters and 6 beautiful grandchildren.
I have never heard of the pancreatic cancer link, so think you may be mistaken. We can get pancreatitis from meds, but its really not that common. Usually when you stop that med, it goes away.
My suggestions for you, is to ALWAYS stay on your maintenance meds. Your current maintenance med is Asacol. Its important that you stay on your meds even when feeling better to help keep the disease under control. You will have to find a diet that works for you. I personally follow a modified low residue diet. This diet is what they usually put you on when your flaring. Now that I am feeling better I have modified it some to add in more items that I can now eat.
Others follow the Makers or SCD diet. This diet are a little stricter and you must follow them to the letter for them to work properly. But some have had success with it. Whatever you do, you should always consider diet and medications as complimentary of eachother.
We tend to be low on. Vitamin D3 and B12. So you might want to ask you doc to test these levels in you. I hope I have helped a little and I look forward to getting to know you more. There are alot of sick people on this forum, and I want you to know that not everyone gets the same symptoms, so don't freak out when you see what some are going thru, as some of the symptoms are less common. Welcome to our little family
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
Post Edited (Nanners) : 4/4/2011 8:41:02 AM (GMT-6)