Posted 4/11/2011 7:18 AM (GMT -7)
I'm right there with you. I just had my 4th resection in March. IF everything had gone as planned I would be back to all/most of my activities by now with maybe a nap in the afternoon. My incision has healed nicely and I can move pretty well. I can wear some of my clothes again, but I can only wear jeans for a few hours at a time even though they are super loose from my weight lose.
But I have had some complications, mainly I have an ileus and the doctors aren't sure how to get things started again. I had so many adhesions that had to be removed that my intestines are just inflamed and sore, so they don't want to do their job right now. Because of that, I can't get back to all of my regular activities. I have no idea when I will have enough energy to go back to work (I babysit, so I need a lot of energy). My housework has gone down hill. On laundry day, I have my husband take all the baskets to the basement and it takes me all day to work my way through them instead of being able to get them done in a few hours, the naps interfere. But, all of this is OK, because I save up my energy for the things that are truly important to me. Each day I plan out what is the most important thing I want to do, and then I will make sure that I can do it. One of the reasons I wanted to get the surgery over with in March is so I would be recovered before softball season (my husband and I coach a high school rec team). This week we have 2 games. So on those days, I won't be doing anything. I will take an extra long nap. Because I want to be at the game. I can't be moving the equipment and carrying stuff, but I can still keep score, encourage the girls, and be there to have fun.
Before my surgery I stocked my freezer with dinners that can just go right into the oven. Meatloaf, chicken pot pie, mac & cheese, shepherds pies. And I pre-cooked pounds of ground beef and meatballs, so it was all set to go for taco's, hamburger helper, spaghetti, or anything else. If you have any freezer space to make dinners ahead it is my one life saver. I didn't have to even think about dinner for the first 3 weeks after coming home from the hospital. And I still have some meals ready to go.
It totally stinks to have to face another surgery, and the first few days in the hospital are the worst, but you know that once you get over the first 2 weeks, things will be looking better. You can't worry about a "possible" complication. They happen sometimes, and when they do, we deal with them, just like we do this DD. After all we're Crohnies, we're tough, we can take anything!
I wish you the best of luck with your surgery and hope you have a complication free, long remission!
CD 22 years officially, 32 unofficially. 4 resections '93, '95 '97 '11
Managing with strict low residue diet, keeping symptoms to a minimum. Hoping last resection took care of all adhesions and blockages will be a thing of the past! Still have a great time with my 2 daughters and husband!
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....