I was diagnosed with Crohn's in the 1980' when I was in my 20's. I am now 48 yrs old. All in the late 80's I had a resection, perforation, temp colostomy and a take down/reversal months later. Back before diagnosis, I suffered hemorrhoids in college and underwent a hemorrhoidectomy and sphincterectomy. Had they known at that time I had Crohn's they likely wouldn't have done that. Now I'm left with little bowel control and now suffer from rectal/anal stenosis and stricture from the build up of scar tissue and the activity of my crohn's for so many years. No meds of any kind for the last 15 years.
I'm faced with the possibility of having a rectal/anal dilation done to break up the scar tissue and "ease" my bouts of constipation which can result in a blockage. I'm worried about
any surgery and the possibility of leaving me with even less control, or chronic leakage, not healing properly and possibly resulting in more pain with elimination. On the other hand, I want to address the occasional but serious bouts of blockage I go through. I was in the hospital for one such occurrence, but recently avoided the ER with another by administering enemas myself, but it was scary and unbelievably painful.
I am fatigued much of the time. I take B12 injections monthly but it doesn't seem to help much. I'm an active adult, work full time but it's getting harder and harder to maintain a "normal" lifestyle. I need to contribute income, but am finding it harder to work and manage my pain, diarrhea, and bouts of constipation and still fulfill my job requirements and daily routine. I'm feeling a bit depressed now, but I think it's because of the recent frustration and the decision I have to make about
having the dilation or not having it. I don't want to make anything worse if I don't heal properly, but I also don't want to perforate again. Having a hard time getting answers from gastro & surgeon to make the right decision. Not much data on this procedure for Crohn's patience and the potential complication rates etc.
My weight is good, actually could use to loose a few lbs but like others have said......doc says not to be concerned with a few too many lbs.....it's the few too few to be concerned with. I guess I'll just look at it as fat stores to help me through the next bout.
Anybody want to offer their 2 cents if you've had any of these same issues? I'd like to hear from anyone who has had the rectal stenosis or stricture issue and "what would you do?" if faced with a surgical option but risk of such complications.
*I made you your own post, so that you wouldn't get buried in another members post*