I can't believe how close our stories are.
For me it has been almost a year. First doctor said crohns, second doctor said IBS and 3rd doctor is still running tests. My colonosopy both times came back with mild inflammation and tiny ulcers found in the ileum. I have just had the capsule endoscopy on April 12 and I am waiting for the results. So I should get to see him next month so far. When I brought back the equipment to the hospital he came to see me and said that he thinks I have the start of crohns but will be more sure after the tests results. Only medications I am currently on is Salofalk 2pills 3times a day and i've been feeling like hell just like you.
I wish you the best and hope that they will find out soon for the both of us. I can completely understand how your feeling.
I too miss my old me, I was 35 pds heavier and had D breast now I'm B size, I don't look anything like I use too.