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Crohn's Disease
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Posted 4/27/2011 4:57 PM (GMT -8)
Hey all,

Anybody experience chronic fatigue with Crohn's? What do your physicians say about this and what kind of treatments (both pharmacological and non-pharmacological) are recommended? Thanks so much!!

Posted 4/28/2011 4:14 PM (GMT -8)
Hi Andrealeigh71,

I am currently experiencing some chronic fatigue, and was diagnosed w/ CD in Feb. of this year. I am currently in my 1st real flare up since being diagnosed. I am currently taking 10mg. of Prednisone tapering down. Everything tastes funny, I am extremely tired, and extremly thirsty which means I am frequently urinating, and I could probably sleep for 10-12 hrs. a day and still feel like I only got 3 hrs. of sleep. I am so tired by the time I get home from work @ 2:30 pm, that by 4:30 I am falling asleep in my dinner plate. I thought it was due to me trying to cut out soda from my diet, but this is just extreme and rediculouis! My husband thinks I need to call my GI, so I will be doing that in the morning. So I will keep you posted on what my GI says!

 

Posted 4/28/2011 4:31 PM (GMT -8)
Well today his GI doc adjusted his Remicade from every 6 weeks to every 4 weeks so hopefully that will help. He is also checking a ferritin level, CRP, and stool for C. diff. I hope things turn out because life should not be like this....trying to stay positive for my husband...
Posted 4/28/2011 8:22 PM (GMT -8)
I was just told to get extra sleep. I didn't get the impression they could help much. I do not have small bowel involvement so I don't think it's a lack of vitamins, other than I could try to eat healthier if I wasn't so afraid of fiber.
Posted 4/28/2011 8:23 PM (GMT -8)
I have UC and I am very fatigued all the time. It's one of the most debilitating symptoms for me.
Posted 5/4/2011 12:53 PM (GMT -8)
I agree, I am so fatigued but this is because I am anemic and iron deficient which are major side effects of crohn's. It sucks so bad especially if you have children. I would recommend taking liquid iron, it really helps with the lack of energy.
Posted 5/4/2011 1:25 PM (GMT -8)
I am in remission, but still tired all the time. I just think that is one symptom that just stays with you in good times and bad.
Posted 5/4/2011 3:42 PM (GMT -8)
Same with me. I am having mild symptoms but feel so tired most of the time. I still doubt myself constantly and think I may be whining or lazy. It is only that so many others here experience same that keeps me from totally doubting myself.

I try to stay as healthy as I can. I carry mail and walk 5 plus miles daily. Today I am off and went fishing. 8 mile hike with a lot of altitude change. Guess I am saying that he might try to stay fit with an activity that he likes or can tolerate. :) Keep an excellent diet too. My doctor never talks about this or gives me advice on it. 
Posted 5/5/2011 1:09 AM (GMT -8)
just awful at the moment - fall asleep in the chair every night after tea and finding it a real struggle to get out of bed in the morning to go to work :(
Posted 5/5/2011 4:17 AM (GMT -8)
Similar with me Kiwi. I get home, sit down and stare at the TV nodding off and feeling like I CAN'T move. I DESPISE this feeling :(
Posted 5/5/2011 5:55 AM (GMT -8)
Me too, I am constantly shattered. My other half mocks me as I have to bd in bed by 9pm each night. I'm currently suffering 3rd flare in 8months. I'm pregnant, have 2 children and work full time in an extremely stressful role. I guess I like a challenge! ;-)
Posted 5/5/2011 6:03 AM (GMT -8)
I went from endurance racing to what the people above are posting very quickly. I can't wait to be able to start trying to get back in shape again.
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