Your not the only one who is confused.
In 2005 i was diagnosed with diverticulosis at the young age of 25.
In April of 2010 I had what they called a diverticulosis attack and was sent for a colonsocopy in May 2010. Colonoscopy came back clear except for the terminal ileum which he was able to see 10 cms ( i was told it all depends on the length of your colon, and how far they can see in your ileum). Terminal ileum came back with small ulcers and non specific biopsy for crohns. He sent me for a barium swallow which came back inconclusive. Doctor did not have the greatest bed side manner only took 2 minutes with me when he gave me the news about crohns. (as you all know i worry alot so my family doctor felt I should see another Gi).
In August of 2010 foung another Gi. This gi felt the ulcers were too small for crohn's and stopped my meds. He sent me for a CT scan and several blood tests all came back inconclusive. He felt I needed a pill cam. Around here there is only one doctor that does that procedure so the referral was sent.
In December of 2010 I met my new GI (my current one). He sent me for a colonosocopy which I had in February. Colon once again came back clear, terminal ileum did not change (same ulcers were found), he also did the upper gi endoscopy at the same time, mild inflammation was detected but non specific. He felt that none of that said crohn's. So it was time to be sent for the pill cam. Pill cam was on April 12 now a waiting results. While i was at the hospital for the pill cam he came to visit me and said after further clinical correlation he thinks i have the start of crohns' but we will know more after the results from the pill cam are in.
As for meds. I was started with pentasa followed by entocort by my first GI, then taken off entocort by my second. Third doctor changed pentasa to salofalk and I'm on 8 a day we started with 3. I'm either thinking that I am getting really worse or the salofalk isnt reaching where the inflammation really is.
So thats my story, now you know why I'm scared and fustrated. I feel as if I am on a roller coaster with no end in sight. Even my family doctor is feeling fed up, he doesnt know why they are taking so long to diagnose. Lets hope that my next visit will be the one that I get help. I do plan on asking my family doctor to prescribe enough prednisone to get me through till the appointment and then i will most like ask the Gi for entocort again or something else depending on what he says.
I feel as my life has been turned inside out, and don't know what to do. I'm starting to panic.