Posted 5/4/2011 10:16 AM (GMT -7)
I hate to complain, but I feel like everything is just piling up like crazy right now. I'm in a really bad flare up (one of my worst) and prednisone isn't helping. It probably isn't to my benefit that my GI doesn't think I'm in a flare up (despite all of the evidence to the contrary: wacky electrolytes, high WBC count, anemia, etc.) because I refused to do an endoscopy without full sedation and he basically doesn't want to take care of me any more. I have an appointment with an IBD specialist on the 16th. Thank God.
On top of the flare up which has me pretty much bed ridden while I'm at home, it's finals week at my university. Also, I had an appointment with my PCP who did some blood work and found that I'm severely vitamin D deficient...also, about a year ago I was diagnosed with having a cyst on my brain stem and unfortunately it's growing and giving me symptoms (nausea, poor balance), so I'm going to have to have that drained at some point by a neurosurgeon.
This week is also job training for the job I got for this summer. I'm going to be an airbrush artist at an amusement park. I went to the training on Monday (barely made it through, and only went because I had pain medication)...but today, I didn't even have the energy to bathe myself. There's no way I'm going to be able to finish training, but I want this job so badly. If I had the job it would help so much with my financial situation with my boyfriend (he works 50 hours a week, 3rd shift in a factory, but all of the money goes to his student loan debt). I feel so guilty and I don't know what to do. Do I call and ask if I can start the season late (like after my flare up calms down), or do I just tell them I can't do it?
I'm so frustrated with my situation right now. This isn't at all where I expected to be in my life at this point. I can't help but be sad about it, but I feel guilty for being sad because there are so many people out there who have it worse.
19 year old female
GERD for as long as I can remember, Crohn's dx in May 2009; Celiac disease dx August 2010
Pentasa, Entocort, Humira, occasional bursts of Pred, Cimzia, Probiotic, Phenergan, Tramadol, Prilosec, Azathioprine