I was diagnosed 10 months ago at the age of 65 - just a few months after my husband passed away. I had been misdiagnosed for 25 years with IBS. A partial blockage sent me to the ER where I was diagnosed quite quickly. I was put on Lialda. I went back to the ER 5 months later with inflammatory blockage. In January, I was put on pred. 20 mg. I have been on it ever since due to other issues. I have experienced every possible side effect of prednisone - anemia, prednisone diabetes, hair loss, moon face, edema, high blood pressure, and ulcers. The omeprazole that I take for the ulcers is also giving me some serious side effects. I have an appointment with my GI next week to go over a treatment re-evaluation.
Two weeks ago, I added 6MP to my list of meds. So far, the only side effect I am aware of with it is fatigue. I have lab work done next week. I don't feel any improvement yet, but understand it can take a while before it works. Immunosuppresion is scary.
It is very difficult to lose my husband and have to face this disease living alone at my age. I have no family nearby and no children so I am pretty much it. I am on a strict low fiber diet, but I am able to eat a lot of low-fiber foods that bother others such as lean ground beef, tomato sauce, dairy products, ice cream, and even well cooked cauliflower, asparagus tips, winter squash, V8 juice, etc. I can't eat fats, fried foods, raw fruits and veggies, salads. I am still learning what I can and can't eat.
My GI is just okay. He has a strict protocol and doesn't relate to me as a person, but as a disease. However, he is very skilled at colonoscopy and endoscopy. My PCP is wonderful and tries to make up the difference. Since I live so far away from civilization, I have had to keep my GI for now as the trip to see another one would be long and difficult for me.
So glad I found this forum as I don't feel quite so alone here.