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My phycologgist appt.

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Crohn's Disease
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Posted 5/24/2011 1:47 PM (GMT -7)
Hi everyone

I had my first phycology appt today. It went well. The phycologist said if she was in my position she would feel the same way and that my feelings of depression are actually normal right now, she called it situational depression. She wants to speak to my family doctor and then maybe my Gi doctor later on, she wants to get the whole story and see if she can help out.  She also suggested that I ask my Gi and family doctor to look outside the box and get an MRI done or to get my other organs checked out, she started laughing and said she will mention it to them when se talks to them.

She was really nice and a little fiesty. She plans on calling my family doctor tomorrow morning and will wait till my next visit to call the GI. I told her she will have fun trying to call him though, the secretary isnt the nicest, she laughed and said she has channels.

She asked me not to give up hope just yet ad to give her some time to work.

I'm kinda scared to allow that hope. She said that it was normal to feel that way.

Lets HOPE that with a little pressure from the hospital they will find out what is actually wrong with me.

Thanks guys for the suggestion of seeing a phychologist.

 

Posted 5/25/2011 6:50 AM (GMT -7)
So glad that you had a good session and have such a fighter helping you. Many members on this very forum are on some type of anxiety or depression med. Who wouldn't with this crappy disease we live with. Hugs!
Posted 5/25/2011 9:51 PM (GMT -7)
Dawg said it all. Had I not found a good caring psychologist that understood PTSD , Old sniper would not be among the living today . Hang in there and hope things look better for you...
Posted 5/26/2011 9:24 AM (GMT -7)
Thanks all.

I so want things to look better.

So far I only eat one meal a day and that is at night after work and I go to the bathroom like 15 to 20 times the next morning, can you imagine how many times I'd go if I ate more I don't even want to think of it.

This morning was bad, I think I almost did it in my underwear twice.

I am so at a lost that it is nice to actually talk to a phycologist. She sympathizes with me because honestly she said there has to be something that they can do to help but right now I'm tired of fighting for my health. She said she is going to help me as much as she can. I want to believe in her but right now I don't see that happening.

I admire all of you, your so strong.

 

Posted 5/26/2011 10:39 AM (GMT -7)
You will be too once a good treatment is found for you. You can believe that!!
Posted 5/26/2011 10:55 AM (GMT -7)
It is great your talking to someone though. Having your mind in a good state can only assist you in feeling better. Being in a good place mentally can only assist you in the challenges you are having and this is important. I find what keeps me going is the internet and sites like this. I find people like you and I feel for you with all my heart I really do each and everyone of you. Thats what you need to remember is that your not alone with these challenges and while things may seem hopeless at times, you never know what hope the next day may bring.



EDIT ON NEGATIVITY : )

Post Edited (sooper) : 5/27/2011 12:58:12 PM (GMT-6)

Posted 5/26/2011 11:34 AM (GMT -7)
I'm confused. Are we talking a psychologist-head doctor-or a phycologist-algae person?
Posted 5/27/2011 7:06 AM (GMT -7)
Thank you all for your posts.
I do apologize for the title I never noticed the double "gg".

I think what I am so scared of is what Sooper wrote that I will be one of those who will not beable to be helped. My family doctor is at a lost as I am for all the tests I have been through it keeps showing that If indeed I have crohn's it should be incredibly mild. None of my blood tests have ever came back showing any type of B12 deficiency or elevated inflammation markers. My large bowel on the scope showed clear and IBD free. The TI showed very small ulcerations and the pill cam showed absolutely nothing. If I am like this now how will I be when I get worse. That is honestly something I truely do not want to think of.
I seen my family doctor yesterday who has sent me for more blood tests but this time to check my other organs he said it can't hurt any just to see.
Last time I saw the Gi he prescribed flagyl and cipro which ofcourse isnt working, he said he wants to rule out the infection part just incase even though all results showed clear of infection.

I really don't know anymore. I think on my next Gi visit I am going to ask to try some crohn's medication even though he doesn't want me too. I know they are toxic but right now I'd really like some relief and if they help, more power to them.

Thanks again guys. ....Next appt with phycologist will be on next Wednesday.
Posted 5/27/2011 7:52 AM (GMT -7)
First off you already do know that a med works for you, Prednisone. Only problem is no one has yet to give you an adequate dosage for the right period of time. And they are still not 100% sure its Crohns.

Personally I find sooper's post a little disappointing. Yes there are a few people with Crohns that have a drug resistant form of Crohns, but that is a rarity not the normal. So please don't lose hope yet. You haven't even got a 100% confirmation that you even have Crohns, and haven't even really had a good chance to try any of the meds. The majority of folks have meds that work well for them, and once they get everything figured out with you and find the right treatment, I am sure you will look back at this time and think why did you worry yourself so much. Its hard being diagnosed with a chronic illness, but like Dawg said you will be able to do things you want to do.

I work fulltime, have 3 grown daughters, married to the most wonderful man in the world. Yes there are days where I would like to stay in bed all day, but I get up and push thru it all. Crohns has done one thing for me, and thats make me much stronger. And it will be the same for you. You are still in the hardest part of the disease, and thats the diagnosis stage. I promise you, better days are ahead.. Hugs!
Posted 5/27/2011 9:30 AM (GMT -7)
Nanners.

I so hope you are right. I try to think positive. I really do . But its been so long since I've felt good and wanted to do anything other than stay at home and cry.
I'm actually getting to the point where I don't care and that is not me. I am not a selfish individual I know there are people out there who are worse off than I am but sometimes I just wish I could get hospitalized and find out what is really wrong with me.

Thank you Nanners.
I will try your words of encouragement but it is still hard.
Posted 5/27/2011 9:41 AM (GMT -7)
Daunting,
I was one of those people they really could not find a great treatment for (the only one that even remotely worked was injectable MTX and it took me down from 35 stools a day to about 12-15), and while it took years I found ways to adapt around my disease. Plus finding the small bowel bacterical overgrowth helped, but I still have some unexplained so far things going on. I think it is sometimes a waiting game to figure out what exactly is going on.

Please do not lose hope, it takes time, and sometime I think there is something to just spontanous remissions, even if they might just be partial.
Posted 5/27/2011 12:01 PM (GMT -7)
I edited my post nanners. No need to come across like I did.
Posted 5/28/2011 9:01 AM (GMT -7)
Sooper

There was no need to edit your post, I completely understand that those are the possibilities I face.  I have always been a realist, but unfortunately dealing with this I now tend to lean towards the negative side of things because I can really say it has been over a year I have not felt like myself and I am scared that I will never. I once was that person that people could lean on for support and I would always be there for them when I was needed I enjoyed helping and volunteering. Now I don't even have the energy to do anything or the drive.

Tsitodawg

I honestly hope I have something curable as well. But as you mentioned I honestly believe I have crohn's but at this point I am starting to believe I might have something else as well, possibly IBS or some other underlying factor. My first doctor said it was crohns because of the ulcers, my second said NO, my third said possibly. I have been told one thing then told another, it seems it never stops.

To be honest with you all I would just like to be finally told what is going on so I can start to deal with it right.

I met a friend of mine on Thursday at my family doctors office and she is going through the same thing as me. Her Gi said she doesnt have crohns but the pathology report states otherwise. So as I am, she is at a lost. She requested a referral to a doctor who is 4 hours away. 

So I do know that I am not the only one out there who is going through this, trust me I am far from selfish. I just want answers and to start to either know that I won't get better or there is hope that I will. Right now I don't know what to think or believe or to do to take care of myself.

As for the medications I want to try, I'd like him to try entocort or something mild I am hoping that it would not be Remicade or Humira just yet. Or like you said anitspasmic drugs. My doctor on Thursday prescribed me Limotil but I am scared to take it. I have some Modulon home from when I was on it with the IBS and I tried a few yesterday and today some of the pain is subsiding, not sure if I like the idea of taking antispasmic drugs with the possibility of crohns. My first doctor said it wasn't a good combination. But I will ask more question on my next visit him, if the modulon helps a bit maybe asking for something stronger might help. I will bring this up with my GI as well.

Thank you all for your posts. The support is welcomed and needed. 

Posted 5/29/2011 8:56 AM (GMT -7)
Dauntingg the Lomitil is to slow the diarrhea down much like Immodium. Also many of us with Crohns take antispasmotics including me. They really help me alot on my poopy/crampy days. You should try them they do help.

I think something like Entocort would be a good med for you as well as possibily something mild like Asacol or Pentasa. They are the mildest Crohns meds out there. Docs try to say they don't work, but I and others have found great success with them. Asacol has kept me in remission for the past 6 yrs.

I so understand where you are coming from, you just want to know whats causing this and then get onto to the business of treating itl I sure hope you can find something to work for you soon. Hugs!
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