Posted 6/13/2011 8:30 PM (GMT -6)
hey Bella; I have cd pretty bad in esoph. throat,mouth, and leasions on my tongue, pred. was the only thing that flared in down, I mean what my mouth and throat felt like, that's what it felt like swallowing anything,evan water would hurt. so I would loose a lot of weight, not good for me. so when I am in long term flare, its always in throat,esoph. mouth tongue, same thing. pain med's don't really work for mouth and throat cd. Funny when I was on rem. thats the only thing that cleared that up, other than pred. I built up anti's from rem. so thats over. I was in car accident, hit from behind, me stopped, them 65mph. within 5 days I was in flare in throat, started then went into mouth with cankers and then tongue got super inflammed, my gi at first wanted to send me to ENT. as well, this was last time I was flaring in throat(it swells and food gets stuck) I've had ER endoscope to remove a piece of chicken. So now after this one, he put me back on pred 40mg and wants me on humira. But I'm on pred down to 25mg and 150mg of immuran and 4 asacol daily. So I can eat, no swelling in throat anymore, cankers are gone, check doesn't feel like I've had egg beaters whipping around, so I know pred. cleared it up, asacol works good for small bowel cd, It seems only biologics clear up my throat, I feel like immuran is beginning to work, it's been since 5/15 accident and 6/3 started pred, had started immuran about a week before, so right now I'm working on getting this flare in my throat in remission, I also have to do physical therapy (accident) 3 days a week. So weird because I had just started taking asacol, and it started working on small bowel and BM's with in 3 days, so I was so proud that I acceived remission with just asacol, pain med's when needed, then BAM! accident, and right back into huge flare. But thats my procedure for now, I need to slowly wean down on pred to be certain. good luck, Bella treating mouth cd is really hard without pred.