Warmest Huggzzz to you. May your weight go to were it needs to be so you can stop the tube feedings and get back to being with your friends, but first those feedings will help you become stronger everyday that you nourish you body. You have been thru a lot an I admire you!!! Huggzzz!!!
You just keep a positive outlook and stay tough.
You are young and you will find the doctors DON'T tell you things you want or need to know, and in those few short minutes they blurt out what our treatment protocol is going to be, we always have questions we forget to ask.
So my advice for what it is worth, is I keep a notebook and I journal things, like on this day this is how I felt. Why am I on this? And okay you want me to do this for how long? this way when I go to the doctor I am armed with info so I can ask about
my care and keep on top of my treatment. If I don't understand something I ask tons of questions! And I write down what they tell me, this way I have the answers and I don't feel like I am left in the cloud of unknown with my treatment.
You stay strong sweetness!!! Huggzzz Leslie
Leslie aka Anastasia Beaverhausen! Crohn's Disease, Currently on Pentasa, Aciphex, Levbid, Percocet for pain, Zofran, Phenergan, Calcium, Vit D, B12, and Valium, Also dx'd /w Fibromyalgia, Rheumatoid Arthritis, Osteoarthritis, Reactive Arthritis 2ndary to Crohn,s, Hasimottos' Thyroid, (thyroid removed 08/03/11) Degenerative jt disease, steno-sis in spine, scoliosis, Anemia, Asthma...etc
Post Edited (AnastasiaB) : 8/11/2011 4:47:40 PM (GMT-6)