Thank you all for your responses. I guess I need to explain a few things that i didn't in my first post. Before my resection I was on Remicade and then I got pregnant. I had a healthy baby girl. The same year I had my my resection. After that I have had flairs off and on but the last time I was on Remicade I had horible reactions and now my GI says I'm allergic to it. I actually went years without any CD meds. Last year I started to lose weight and knew I was starting to flair but was trying to ignore it. In december my mom past away suddenly and thats when I really started having problems. I did have my first colonoscopy in april.( don't ask me how I got away with not having one in the past) but it showed I was flairing up. My GI put me on Cimzia and I did the injections till it was time to do it every 4 weeks. The reason I stopped was because I can't stand how I feel after I take it. I can't function at all the day after and for at least a wee after. I am going to start taking them again because I have no o it ther choice.
My oldest son who is 20 just moved out and he was my biggest help. I think he is the only one that does understand what I am going through because he was here when I was so sick in 1999 and he took care of me while my husband was at work. My 11yr old daughter doesn't really understand and I have a 7yr old daughter who is developmentally delayed and she really doesn't understand at all and there is no way to make her understand. I also have a 17yr old who is a run away and that stresses me out a lot.
I have tried to explain to my hubby about my weight loss. I told him what the doc told me to tell him. That the inflamatory disease burns calories and even though I eat and eat it doesn't matter. My hubbys mom died from colon cancer in 1996 and I think he's worried that it will happen to me. But instead of sounding sympathetic he yells at me. Plus now that I'm having other problems like my joints and body hurting he doesn't understand. Also he doesn't really believe that depression and anxiety and panic disorders are actual diseases.
I would go to a counseler but our insurance does not cover mental health or mental health medication.
I think I am going to try to go see my moms RA doc and see if she can help me with the symptoms I am having. I really am going to have to start taking care of myself first or I won't be able to take care of my family like I should.
I am sorry for rambling on so much but I was trying to answer everyones post all at once.
Thank you all for your advice I really do appreciate it. I'm sorry if some of my spelling is wrong my 7yr old has been talking to me the whole time.
36yr old female married with 5 children Dx with Crohns 4/1999, IBS entire life.
Major depression with severe anxiety disorder. Bowel resection 12/2000