Hi everyone.. I've been reading these forums for quite a while now so I thought I'd better introduce myself.
I am a 40 year old male from the UK and was diagnosed with Crohns disease back in 1994. I guess I was suffering for about
2 years before my diagnosis but for a long time I put the pain and cramps down to stress (work and life). I finally went to see my GP and when I described my symptoms he told me straight away he suspected I had Crohns disease but would need to go through some fairly unpleasant tests to confirm this. Over the next 6 months I had just about
every medical instrument I can think of pushed/prodded and poked into every unimaginable part of my body (you guys know what I mean). During this time my health deteriorated pretty quickly and after losing about
4 stones over a 6 week period due to not being able to eat or keep anything down I ended up in hospital.
I spent 5 days there not being allowed to eat while more tests were done and was finally given the diagnosis of Crohns.. this scared the heck out of me. I was put on Entocort and realeased.
Over the next few years I was on and off Entocort and it kept me pretty well but then slowly it seemed to lose it's effectiveness and I was becoming pretty sick again. My doc told me that I needed surgery (small bowel resection) as recent tests showed my Ileum and the surrounding areas were narrowing severely. I refused this surgery for some time due to fear but eventually 2.5 years ago I was told that I had to have the resection done as a matter of urgency.
I had the surgery back in Feb 2009 and was back to work after 6 weeks and felt pretty good but after a few months I began to feel ill..I kept going dizzy and blacking out and it was discovered that my iron levels were dangerously low. A quick transfusion sorted that out but while I was in hospital they found out that my Crohns had returned.. returning within 6 months of surgery is bad luck apparently!!. I am now on Infliximab infusions every 2 months and feel great... oh i got a fistula too which they sorted for me and I have a seaton stitch in which I've had for about
14 months now, this is alittle annoying as I can't ride my bike anymore.. the seat rips me to shreds lol.
I also take Aziothioprin and have B12 injections every 3 months.
Lifes not perfect but I do ok, I'm very lucky to have a wife who understands that some days I'm not on top form. We work together too so I can't hide anything from her. Even if I tell her I'm OK she knows when I'm not, kind of annoying sometimes.
When i read the forum I can relate to just about
every issue that's posted and it's kinda good to know that I'm not alone with this (not that I'd wish this darn disease on anyone of course).
Well that's my shortened version of events, I hope I didn't bore anyone.
Post Edited (Skalaberg) : 9/15/2011 6:28:56 PM (GMT-6)