I have had Crohns for 17 yrs now and 99% of the time after a meal i get very painful diarrhea. The confusing part is when i get scoped the amount of diseased areas in my ileum (one of two major diseased areas for me) isn't that impressive. My rectum and the last couple inches of my large intestine are moderately diseased but according to my GI this shouldn't create overwhelming BMs. This is super frustrating because i am tried every drug, biological and nonbiological and they can not control it. Even messed with my diet many times, gone gluten free,taken probiotics,etcs. I swear when i talk to my gastro he doesn't always believe me. I am in tremendous pain a lot and i unfortunately i have to take narcotics to keep my pain under wraps.
Is anyone experiencing the same issues? My GI and i are both frustrated. He did mention that the disease might be in the lining and therefore unseen. I have had two resections with little to no impact.
35 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)
Medication history: Prednisone, Entocort, Azathioprine, Sulfasalizine, Cimzia, Humira
Current Medications: Remicade (5mg per kilo - every 6 wks), Cipro, Lomotil, Reglan, Percocets PM
Surgeries: 2002,2005,2010, 2011(perianal surgeries) - 2004,2011 (small bowel resection)