I can completely relate!! I started cimzia last week, and had a little anxiety attack later in the day when I was feeling lightheaded and nausea. I have a couple of friends that I joke with about the side effects, and it helps me to try and make light of it. It's not to say every twinge doesn't send me worrying, but sometimes my brain works on overdrive. I try to just stay in the moment as much as I can, and focus on what I can do to feel better and not what might happen. Oh, and when I'm on prednisone, I'm moody and irritable and I worry and obsess way more than I would normally!
I will tell you that I work with kids in a public library, and I've been on several different immunosuppressants, and I haven't noticed any increase in infection. *knock on wood!*
Xanax has been a life saver, and sometimes it helps just knowing I have it and I don't have to take it! I've also found guided meditation/hypnosis CDs to be very helpful. I use one a few times a week to get to sleep, and I've been trying to listen to an IBD one everyday. Talking helps too!! I really kept things to myself too long--influenced by ex and my family. This forum has helped, and I've opened up to more people and feel like I have more of a support system that I ever had.
Hang in there!
Diagnosed w/Crohn's in 2005. Currently on 40mg Pred, Pentasa (2pill, 2xday), synthroid, allergy meds, B-12 (liquid), multi-vitamin, probiotics, and xanax, ambien and vicodin prn. No surgeries. Have tried: sulfasalazine (developed a mild rash), Asacol, entocort, imuran (rash, nausea), humira (joint pain/fatigue), remicade (serious joint pain/fatigue stopped after 2 doses), 6MP (not effective)