I had my first infusion Friday, everything went fine, no reaction, came home and felt pretty tired but I pre med with 500mg tylenol and 180mg Allegra per my GI. Prior to starting the medicine I did all the reading I could and of course when you read things like increased risk of infections (which happened to me almost immediatly after starting Imuran, though I think that was an allergic reaction) it tends to scare you. In my case it really scares me. If I could avoid it I would, but my symptoms don't seem to like it when I go under 20mg of Pred.
I've been a Crohnie for only 6 months and so far the mental toll has been far greater than the physical one. It doesn't help me that I'm on such a potent med, I realize it can really help but the side effects keep getting in my head... I really admire those of you who have dealt with this for years. I have my good days but my bad days are a mess, and it's not the CD... I rarely have pain, my BM's are mostly normal... I just get so upset and afraid of things getting worse, or getting sick, etc. it tends to take control and the anxiety leads to things like chest pain or weakness which fuels the cycle.
Anyone else feel similar when they started Remicade? I feel like I'm just waiting for something to go wrong, and that's the worst thing I could do... but I can't seem to remind myself that I'm actually doing rather well.
32 - DX 06/11
Meds - Prednisone 30mg, Pentasa 2000mg, Xanax
Pancreatitis from Imuran.
Currently doing well