Posted 12/2/2011 9:31 PM (GMT -6)
Welcome! I, too, am fairly new to the forum, as well as to Crohn's itself. I am glad that you have been doing 'ok' and I am sorry to hear about your stricture. Hopefully you will be able to postpone that surgery for as long as possible! I was diagnosed in May myself, and was told I have a very aggressive form according to a genetics test, so I am trying to be religious about taking all of my medications. Still, I fear that my future will hold hospital visits and the like - not a fun prospect for someone just graduated from college.
In reference to your experiences with "...but you look ok" sentiments, I recently read a really good article authored by a woman with Lupus who has to explain to her friend what living with an autoimmune disease is really like on a personal level. I am not sure if you have seen it before but it is called spoon theory and can be found here: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/. An alternative is to simply ask the offending party how often they s**t their pants because their intestines just suddenly up and got bored :)
I personally have the opposite problem, actually. One of my close family members, upon finding out that I had Crohn's, was like "oh yeah I have some of those symptoms too, and my doctor wants me to get a colonoscopy to check!" - keep in mind this is a 58 y.o. woman with absolutely no history of any digestive system ailments. Gotta keep the attention focused, know what I'm sayin'! Can't have no stinkin' spotlight stealers. I guess it is better than minimalization (I decree that is now a word) of the problem, though.
All my best and keep up the optimism! Give your pets hugs for me - mine are what keep me going!