Posted 12/4/2011 3:03 PM (GMT -6)
I have been in a full on flare since 11/2. They put me on 40mg of pred taper and tripled my asacol. Last Tuesday night I had the equivalent pain level of my chrons flare sideache 10/10 and went and saw the GI on Wed after popping 10 mg of oxycontin every 4 hours till I saw her.
They did a small bowel CT scan with contrast and did a panel of blood work. They said that the inflammation is down with my crohns shown by the CT and i guess something called markers were at "0" and that the pain I was feeling was NOT related to my crohns but due to chronic abdominal pain syndrome due to my appendectomy scar when I had my appendix taken out when I was 19. (I am now 39) The reason why I went to the GI was because when I normally go on pred, the pain level bumps down after a couple of days and I'm set for the duration of the taper. I have no idea why it spiked up like that
They want to give me a cortisone shot into my abdomen this upcoming week to see if that makes the pain go down. I don't really want to do it but I also don't want to be taking oxycontin and getting addicted to it so I agreed. However, I do not feel that is the issue. I have had constant side pain in that area since I was diagnosed in 2007. Whenever I flare, I can tell i flare because my side pain jumps from a normal 4-5/10 to a 9-10/10. I think they just want to quit trying to find the cause. I normally do not get the standard crohns symptoms when I flare: no diarreah (I'm normally C so my body shuts down and nothing comes out for days even with miralax or laxatives), no vomiting, don't have fever, don't have blood in stool. I just have excruciating pain, am extremely fatigued, and feel "off." if a colonoscopy didn't show my lesions, I would doubt i even have crohns because I get treated like a nut job. i guess I'm just a weirdo!
Has a) your side pain due to crohns ever been told that it wasn't crohns related anymore? or... have any of you had a pain in your body that isn't due to anything they can find and you just have to suck up and deal with it? I have always believed that pain is because of something wrong so technically someone should find out what is causing the pain not MASK it with pain killers or cortisone. c) Does crohn's make our nerves misfire?
I just don't know what to believe anymore. 0_o Help?