Posted 12/9/2011 5:37 PM (GMT -6)
I have always told all my colleagues at work and some of my customers of the situstion arises in normal conversation and you do get the odd remark about how nice it is for me to eat what I want and not put on weight but people say them without thinking and don't really mean it. Try not to take things to heart as often things like that are said without really thinking. When I explain it I tell them how it effects me and what it does to me, like I can look really well on steroids but feel like hell and they soon understand.
The more people you tell and explain how it effects you the more they will understand and people tend to be curious and will ask questions, tbh that is best as you can tell them rather than them 'thinking' they know what it is just because they read something about it somewhere.
When I tell someone I have CD, they say (nearly all of them) of that's a horrible disease I'm so sorry you have it as everyone seem sto know someone who has CD or UC and often we will then talk about different treatments and I'll also say about the surgery I have had and that I have an ileostomy for 20 years. No one can see I have it and they are always surprised that I have it and work fulltime and this shows them even with chronic illness you an still be a competant employee. It is nice as my customers who know will tell me if I've lost weight and ask how I am and they are really concerned, which is kind of them as I am just an employee not a friend.
Once you tell one person, it does get easier as you tell more people.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.