Posted 12/25/2011 1:03 PM (GMT -6)
Understand that small intestine cancer is very rare. And, of course, deadly since it is so difficult to find. Given the rarity of small intestine cancer I have to wonder about his "because of the locations" comment.
Have you scheduled the surgery yet?? I'd be inclined to insist on the APC for the possiblity of being able to do the PCE.
How well do you know this gastro? I ask only because there are those doctors inclined to tell you anything they think will get you to do what THEY think/want you to do. That is what I ran into at that 6 week hospitalization before my resection. The local surgeo kept telling me I had perforated (and maybe I had, I have my doubts) but he also told me my Crohns was all up and down my entire small intesting. He couldn't/wouldn't tell me what he expected to do, how much the thought might have to be removed, etc., etc. I kept refusing the surgery as I looked at those SBFT films myself and it looked to me like it was still confined to the one area - and more importantly - back then we sat on the table whilst the radiologist went thru the films and marked the area(s) of interest which we could watch on the monitor and HE only seemed intersted in the one area and only marked the one area.
After 6 week w/that NG tube I had some areas of serious irritation from it but when I complained about it was just told to live w/it, it was needed since I wouldn't agree to the surgery. I finally just pulled the dang NG tube out myself and sure enough, three bloody rings right were I said it was hurting me. When a big, burly male nurse marched in w/a new NG tube to be put down followed by a female nurse w/shoulders like a football player and a syringe I panicked and blew my mind. I was screaming, hollering and throwing things at them. The minute they left the room I was on the phone to Mayo Clinic.
Long story shortened I flew to Mayo, was admitted thru ER at one of the hospitals there and had my resection the next day when the Mayo docs assured me the Crohn's was still confined to the one area to the best of their knowledge from my films, no guarantees but they expected to only have to removed 12" - 18" inches of small intestine and that I would have a 60%-40% chance of the Crohn's returning at a later date.
I liked the odds and had the resection the next day.
That local surgeon was NOT the first, nor the last, doctor I encountered who tended to tell me what they thought I needed to hear to get me to do what THEY wanted me to do w/no consideration for my thoughts or feelings on the matter.
I you want to do this surgery because you have been feeling so miserable even if there were not the threat of small intestine cancer - go for it. If the only reason you are agreeable to this surgery is due to the suggested risk of small intestine cancer - take a break and insist on the APC and hopefully PCE.
Good luck and God bless regardless your decision. (((hugs)))