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out of work for another 3 months

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Crohn's Disease
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mirowpl
Veteran Member
Joined : Nov 2009
Posts : 590
Posted 12/31/2011 7:58 AM (GMT -8)
MY internist took me out of work on Oct 21,2011.  I had lost weight, was having 6 BM a day with D and basically felt bad.  on top of that heart and blood presure was going crazy.  I just saw her tuesday night, fully expecting to get my release to work.  However, she shocked me by saying unless i was going to get fired, she would not release me until April! My blood pressure has been crazy moving from way to low and needing bags of fluid to way to high and having to add moe meds.  (BTW I take 6 different blood pressure medications a day now-they told me i was now in the 1% of how bad it can get with out of control HBP) she said i needed to show that I could remain stable/ healthy for a 30 day window. WOW..  I was not expecting that.  However, as i listened to her she made a lot of sense as I have a high stress job and she did not want to see me in the ER in a couple of weeks and start over all the progress we have made.  Unfortunately, my income on STD pay goes to 65% so the family and i need to find ways to cut back even more.

While she is not my GI, she is in complete control of my overall health and coordinated with all my other doctors.  She told something interesting while I was there about crohn's.  She said that while I am pretty much symptom free right now, my colonoscopy show active inflamation, although it was no worse that last spring.  She also said that once anyone has surgery to remove small intestines, the body reacts in very different ways, but mainly, lower appetite, some weight loss and then assortion issues which cause blood problems.  She said as along as they see any ulcerations, you are not in remmission..period-that is the new standard. which this makes sense as many of us have problems even when the colonoscopy does not show much.  Her take was this is a cronic inflamatory disease and it manifests itself in many different ways and that no one with crohn's should be viewed as  "text book".

I am so glad I have her as my internist  She definately has my best interests in mind.  Funny notew, I asked her what about the STD still agreeing with her...she said she know how to play their game and what buzz words they need to see in her notes.  Plus she said id anyone really reads the notes of what a crohnie goes through, they will not question STD.    BTW,I am waiting on the remicade load factor test results to see if I switch from remicade (2nd attempt at remicade in last 2 years)

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Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 12/31/2011 8:21 AM (GMT -8)
Sounds like you have a wonderful new doc. With my last flare I had much the same issues with bp and low then high blood pressure. I was pretty dang sick and had to go thru tons of additional testing, but luckily for me all is okay now that the flare has quieted back down. You take the time you need and heal your body. It took me four months, and to be honest I should have called it a day, but I have one large bill I have to pay off, then after that I am done. After 36 years with this darn disease I have had enough. Big hugs to you!
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mirowpl
Veteran Member
Joined : Nov 2009
Posts : 590
Posted 1/1/2012 7:06 AM (GMT -8)
thanks nanners. My doctor has been pushiing me to go into full disability since it i s so hard to manage all my issues. However, I still have one in college another in high school. I want to try and make it 5 more years to get the younger one out of college.....then time for me to go.... I hope I can make it that long. I told the Dr my plan/need/ she said OK, but for me to be realistic that I might be in and out at times on STD to allow my body time to recover from flares.
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mirowpl
Veteran Member
Joined : Nov 2009
Posts : 590
Posted 1/1/2012 7:06 AM (GMT -8)
thanks nanners. My doctor has been pushiing me to go into full disability since it i s so hard to manage all my issues. However, I still have one in college another in high school. I want to try and make it 5 more years to get the younger one out of college.....then time for me to go.... I hope I can make it that long. I told the Dr my plan/need/ she said OK, but for me to be realistic that I might be in and out at times on STD to allow my body time to recover from flares.
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Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 1/1/2012 7:40 AM (GMT -8)
Yeah my docs have been pushing me that way too. I am trying to get thru the next two years and that will be it. Good luck to you!
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