biologics and probiotics- is this dangerous??

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madigascar
Regular Member


Date Joined Jun 2011
Total Posts : 123
   Posted 1/3/2012 4:41 PM (GMT -7)   
Hi guys- so I'm trying to get a prescriptions for vsl #3 (probiotics) for my husband. And his GI said she doesn't want any of her patients that are on biologic meds taking vsl #3. Actually she doesn't want him on any probiotics while on Humira because his immune system is suppressed and with probiotics, she doesn't want to introduce too much bacteria into a immune suppressed system. Does that sound right?

Anyone on Humira/Remicade and probiotics?

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1120
   Posted 1/3/2012 4:48 PM (GMT -7)   
This makes no sense to me. We introduce good flora to croud out the bad. You might want to read The Probiotic Revolution by Huffnagel. It is very insightful on this topic. Also lots of Crohnies react very badly to vsl#3, although for some it helps.
Dave
SCD - Fanatical Compliance since Nov 2010 (Low Carb, Healthy Fats, No Processed Foods, Low Omega 6, Tumeric,...)
Buys all expsensive drugs from Canada
Pentasa (3 x 500), Vit D and B complex, fish oil and SCD vit. Amitriptyline for sleeping
Feeling good to great, almost every day!

madigascar
Regular Member


Date Joined Jun 2011
Total Posts : 123
   Posted 1/3/2012 7:40 PM (GMT -7)   
Right that's why I'm confused...hmmm

Why do a lot of Crohnie's react badly to vsl#3..is it something special?

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 1/3/2012 8:00 PM (GMT -7)   
Why would you need a prescription for probiotics? You can get them in the store - I take Humira and when I am not feeling well or in the rare and frightening instance when I have to take antibiotics I take twice the dose of probiotics. That combined with all the other things I do to try and keep myself healthy seems to work for me.

Good luck!
Crohn's Colitis
35 year old female
DX 2006
Currently on Humira, Xanax for anxiety, multivitamins, extra Vit D and calcium
In the past have taken 6mp, Prednisone and Remicaide

madigascar
Regular Member


Date Joined Jun 2011
Total Posts : 123
   Posted 1/3/2012 8:19 PM (GMT -7)   
You can get a prescription for Vsl #3 and get it covered under insurance.

Do you guys think eating kefir or yogurt everyday is as helpful as taking probiotics supplements?

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 1/4/2012 3:33 AM (GMT -7)   
Hi madigascar,
 
This was something that I looked into last year(at least I think it was last year-they are going too quickly for me :) )
 
DS was/is on Azathioprine(different drug group to Humira but also a drug that suppresses the immune system) I did a lot of online research and came across several reports that said that current advice was for patients with a suppressed immune system NOT to take pro-biotics(there had been deaths in people with a really suppressed immune system). However I was also aware that many Crohn's sufferers did take pro-biotics and have felt positives rather than negatives.
 
I spoke to people who produced the pro biotics that son was on and they advised for him not to continue on them.
I was still scratching my head on this one and spoke to a friend who is a consultant (in a different field) who, however, prescribes vast amounts of immune suppressants at a far greater strength (think transplant strengths!) Her opinion was that the strength prescribed to a crohn's patient was not that big and that there should be no problem and that the issue came when the immune system was severely compromised(like in transplants/chemo etc)
I don't know the strength of Humira with the immune system (although I am aware that it is considered one of the 'big guns') so I really don't know. There are many on it with no problems BUT your GI really should know all the pros and cons.

Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1695
   Posted 1/4/2012 5:24 AM (GMT -7)   
Do a lot of people with CD react badly to VSL? I've been on it for two years now and I always thought it helped.
Diagnosed 2009 proctosigmoiditis, 2010 Crohn's colitis, 2011 ileocolitis
Symptoms since 10.2007
Pentasa, four grams/day
Rowasa enema, 3 grams every other night
VSL#3 DS four packet/day
Turmeric, digestive enzymes, boswellia, propolis, cat's claw, l-glutamine, fish oil, vitamin D, kefir, blueberries
Liver-Milk Thistle; Heart-Hawthorn, sometimes

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1120
   Posted 1/4/2012 6:09 AM (GMT -7)   
There have been studies that show that VSL can help folks with CD. I have read them, so for some it helps.

However, there are strains of bacteria in VSL that can over grow and cause issues. This has cuased flares in a bunch of people, again the studies are out there. On the diet I am on it is to be avoided for that reason. I make yogurt that I control which strains are included. It has about a trillion live cultures per cup and I take this twice daily. Each cup is about 4 times stronger than VSL and it is way cheaper.
Also, I would rather take my probiotics from home made organic milk, than more pills.
Dave
SCD - Fanatical Compliance since Nov 2010 (Low Carb, Healthy Fats, No Processed Foods, Low Omega 6, Tumeric,...)
Buys all expsensive drugs from Canada
Pentasa (3 x 500), Vit D and B complex, fish oil and SCD vit. Amitriptyline for sleeping
Feeling good to great, almost every day!

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 1/4/2012 7:21 AM (GMT -7)   
I'm on Cimzia and Imuran and I take probiotics daily. My integrated doc recommended them.
Stephanie
Crohn's dx April 2003, in remission 2004-December 2010
Apriso, omeprazole 40mg, Cimzia, Imuran 100mg
Severe Crohn's throughout the colon 12/10-present, improved some with Cimzia but going back downhill now. Added Imuran 10/11

Bipolar I dx 2009
Saphris 10mg, Zoloft 100mg

Surgeries:
Cholecystectomy (gall bladder)-7/2011

madigascar
Regular Member


Date Joined Jun 2011
Total Posts : 123
   Posted 1/4/2012 9:23 AM (GMT -7)   
Wow thanks for all the feedback!

Vixen- that totally does make sense. I guess its a cautionary measure my hubby's GI is taking. I talked to my husband about it and we're going to think about it and see what feels right. For the time being I bought him some kefir.

I think if he takes any probiotics, it won't be vsl after what u guys told me. Any other probiotics recommendaton?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/4/2012 3:18 PM (GMT -7)   
Most common probiotics used are Culterelle, and Align to name a few. I use Primadolphilus Fortify by Natures Way and have good luck with it. But...I am not on biologics either. You might ask Dave about the SCD yoghurt he makes, its got tons of natural probiotics in it. Good luck!
Gail*Nanners*
Crohn's Disease for over 36 years. Currently on Asacol, Prilosec, Estrace, Atenolol, Percoset prn, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid, Magnesium & Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis. Currently my Crohns is in remission, but my joints are going crazy

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 1/4/2012 3:29 PM (GMT -7)   
I have tried probiotics a few times and different sorts from tablets to capsules to drinks and all of them gave me horrendous stomach cramps. I carried on taking them for three-four weeks each time before giving in as the cramps were getting worse not better and resigned myself that my body doesn't like healthy stuff anymore, junk food it is fine with but healthy and it kicks uo a fuss :)

keepingfaith
Regular Member


Date Joined Nov 2011
Total Posts : 360
   Posted 1/5/2012 10:55 AM (GMT -7)   
I don't use that particular brand but I am on probiotics and Remicade. My GI actually was the one who told me to go to the store and buy a probiotic after I had my second infusion. You have to find the right kind though. Some probiotics make my stomach too crampy.
Current medicine: Apriso, Remicade(Hoping this will be a miracle drug!), Amitriptyline,Prednisone (Tapering), Hydrocortisone suppository, Zantac, Prilosec, Probiotics, Folic acid, B-12, Zinc supplements, pain meds & SO much more.
Previous meds:
- Asacol
- Flagyl
- Amoxicillin
- Cantasa suppository

Dx: Crohn's and the arthritis that comes with it
In current flare: Feb 2011
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