Long story short is I have a fistula that is not healing with just the Humira my gastro doctor has me taking. While the fistula is not draining outside my body anywhere it is causing abscesses near my rectum. Once had to be drained by the surgeon and the other burst on its own in the same spot the surgeon sliced
open during surgery 6 months or more after it healed and closed up.
But I'm still have lots of pressure in my rectum when I stand/walk and the incision area will swell and get hard then go away, then get hard, so on and so on and then like I said burst through once so far. So the colorectal surgeon is telling me I need to have that portion of my small bowel removed as thats the only way to finally get rid of this fistula. He will also do some looking around my rectum area to see if I have any issues there or if its all just the fistula.
I'm just worried that for one its a major surgery and that in itself is scary but I worry about problems later on down the road. Like strictures and bowel obstructions from the scar tissue that will form etc.
But then on the other hand I hear about how many people feel sooo much better after have this done that they had wished it was done sooner.
Please tell me some of your resection stories, the good the bad and the ugly to help put my mind at ease. My head is just spinning.
I don't know if I should go for a 2nd opinion as this is my second surgeon, but my first colorectal surgeon. I was just seeing the general surgeon that drained my first abscess when I was in the hospital but when he couldn't seem to figure out where the fistula was or the cause of my pressure I thought it best to seek a colorectal.
So I'm just lost and looking for a bit of direction and experience I guess.