Posted 1/10/2012 8:11 AM (GMT -6)
I think we've all been here to a point (not necessarily the ulcerations... but you know). I was diagnosed when I was 41 in Florida with no family history of it, and yes no insurance also (the system is not fair). Mine started with my gall bladder going fooey, and creating immense pain. It was a few months, and suddenly the orange juice, milk in my coffee, jam on my toast, vegetables (particularly onions, and tomatoes) just going out as fast as they went in. I went to the hospital 3 times and was told, "oh, you have ileitis." I was asking myself, "what the hell is ileitis anyway?" Eventually I went to another hospital, and they admitted me via emergency room because the doctor wanted to spelunker around my colon and find out what's up. They had me on flagyll, levaquin, vitamin bags; the antibiotics were killing me inside. All I could feel was pain. The morning of the day I was supposed to receive the colonoscopy the pain was so intense I had to ask the desk of nurses was there anything like pepsin that could be administered to which I was told that they had to ask the doctor; so I asked them to call the darn doctor asap because this pain could not be good. I ended up throwing up bile that looked like green coolwhip, and showed the charge nurse who told me to stop being a ****in' baby, and get back to sleep. I asked out of desperation for some pain killer, and was labeled "drug seeking". I called 911 from Broward General, and asked for the nearest transport to another hospital because these people were clowns including (not to be racist) the 7.5 foot tall Haitian creation they call a charge nurse. Bottom line I was stuck in the Broward General. I got the colonoscopy, and the PA felt I had Ulcerative colitis, and I mentioned the bile to him, and was ignored, told to take pentasa, and stay on the antibiotics as he thought I had a low grade infection even though white cell count was below 10,000. I had my partner come in later that day posing as a PA, got my records, and the doctors attention asking him why I was being flogged with antibiotics. The doctor showed him the spot on my lungs (from quitting smoking while hospitalized), and he explained this to the doctor, and got me released (THANK GOD).
I zoomed to the internet upon my arrival home, and looked up UC, and found articles on Earth Clinic dealing with black strap molasses, and bromaline. After about a week of the SCD, and the little supplement regimen I was feeling like people again. My pride was about to be dashed 2 months later when I went and bought a watermelon, and after a couple of bowls the fiber got stuck in my ileum... oh no! It took a week to recoup from that, and after that I started running low grade fevers (99.8- 101.7) and knew my immune system was upset with something and visited a different hospital within the Broward system. Two hours later I was told I was going to be admitted (gall bladder was near septic, and had to be removed). Fast forward to my discharge, which I thought was most triumphant in spite of wearing the j pouches, and having a nice large scar. I went to Denny's, and ate, and ate, and ate. It felt good to be able to eat what I wanted to. In November of that year (2009), I reacted to my bosses barbecue sauce (amazing stuff) while at work in a call center (uh oh). One of my friends suggested I grab some kaopektate on break. I did this, and in a matter of days I was back to square 1. Eventually all good things must come to an end. I was admitted to the hospital again (UC I thought). The doctor came back and told me it was crohn's disease. The pain killers were good because this doctor knew how to use them and dilaudid will forever be my choice because it does not constrict muscles, making them relaxed (including intestines), and I was on cloud 9 because I was not itching like I would from morpine, and didn't have that huge headache. Fast forward to now; I have tried all of these little remedies, etc. I now have found that taking a regular multivitamin, vitamin d3 (my therapeutic level is 4000 mg, and yours may be different), the first week was boost (lactose free) for meal replacement, and graduate into boiled vegetables (broccoli, cauliflower, potato, yucca... etc), bread, soups (no onions or tomatoes, or beans with shells) for the next 3 weeks. As you are taking the vitamin d3 (could be upto 10,000 mg), you will notice things solidify, and if you make an oops in your diet once or twice there is no more excruciating pain in the ol' ileum. This has worked for me for the last four months and maybe there is someone else that may benefit. This is my experience through 8 jobs in the last year, and refusing to do disability as long as I can. Do not stop your medications if you are on them, and if you are networked with a doctor, ask their advice (before mine).