I have the same probs, but can't offer much in the way of answers as I too am newly diagnosed8/11. I do have a history of numerous kidney stones as well and have had occasions where I couldn't tell the kidney pain from the CD pain. Although, I have had severe symptoms of what I now know was the CD since 2003. I had several instances before my diagnosis when I would go to the ER, sick and desperate and the doctors would make me feel like I was crazy and it was all in my head. I find myself frankly pissed off for having gone through so many years of pain and docs not believing me. I don't understand it, I had a distils in 2003, but still was not diagnosed. I think maybe a lot of it had to do with not having insurance or being able to afford adequate medical care. I know I have kind of got off topic here, I just wanted to share my background a little. My point is that throughout my clueless years, I have had different medical problems that I am now finding out have some correlation to CD. You sound like you are in good hands with your doc, though. My advice to you would be to write EVERYTHING in a journal. When you go to your doc, pick his brain and ask him lots of questions. As I have learned, you are your best advocate. I don't have a gi right now. The doc that diagnosed me volunteered his services through a free clinic. Since my dx, I have gone on my counties medical maintenance program and have been waiting on a referral to a new gi for months now. All the while I have been in a constant flare and not being on any maintenance meds, when I go to my gp, urgent care, or hospital, they just put me on the high doses of pred, flagyl and cipro. Ny referral is now at a state status, but I beginning to feel like I'll never get it and I think the steroids are turning me into a crazy person! LOL I just want you to know that you're not alone in the discovery process of being newly diagnosed.
Your info was very helpful and insightful! Thank you for taking the time to post a novel.:•) It's comforting to read the posts from people with more experience with this disease. Probably more so for me, since I don't have a gi to call and talk to. Thanks again!