Remission has been nice for the past 5 years, I thought Remicade was my miracle drug until it started wearing off 4 months ago and I'm in a flare. Now i'm having extreme dejavu from when I was super sick years ago and the fear of being back in the hospital is depressing me. I feel like a guinnie pig that my GI doctor just keeps experimenting all these different drugs on, when they didnt work for me last time. I meet with him today for the next game plan, who knows what that's going to be. My biggest concern is the blood loss, it seems like the bleeding is never ending and when I have a "blood movement" the pain is so excruciating that it makes me vomit.
I'm hoping that there is light at the end of the tunnel, and maybe someone has some encouraging advice to give before I lose it