This forum is seriously depressing at the moment

NCOT just wanted to send you some big hugs! Steroids the meds we love to hate. I so agree with calling your GP for something like Xanax, Klonopin or Valium. I take Xanax and it really helps me during those anxious moments. Quiets things down so I am not so stressed. Hugs!

Not much to say to this, so:

<<<<<<<<HUG>>>>>>>>>

Sincerely,
Matthew

Get well soonest.

Hi NCOT,
I won't let my GI put me on Prednisone without xanax to go with it. I usually only take the xanax at night, unless I'm in big pain, but it definitely helps. I also almost deliberately get quieter and maybe a little more withdrawn when I feel agitated from the Pred so I avoid taking it out on others if I can. I feel so bad for my husband....he looks stressed and tired from all of the months of my being sick. It takes a toll on our loved ones too. I can totally relate to your frustration though. I hope you get feeling better soon!

NiceCupOfTea said...
The Pred twitchiness seems to come and go with me. I was ready to bite my dad's head off in the car on the way to the supermarket today, although I bit my tongue instead. To be fair, though, it's hard to tell what is the effect of the Pred or what is simply my own natural irritability <_<. I do like the extra energy that I get from a high dose of Pred, however. It's subtle rather than blatant, but it does mean I can do stuff like post on forums again (lucky HW :p)
.

What did your dad do?

Boy do I understand the guilt of having to have my parents take care of me. I don't know what I'd do without my parents...both emotionally and financially since they pick up the slack when I can't work. I feel like such a burden to them, but what can ya do?

I also have some hormonal issues (can't be on birth control to regulate them) so I have some severe mood swings, so I completely understand overreacting and not knowing whether it's the hormones or just regular irritability.

BTW, went to my GI today and may be facing another surgery soon. He wants to do a scope and see if the scar tissue is inside the intestines. Basically my surgeon should probably have done a resection but just cleared scar tissue outside the intestines and thought they looked good from the outside. My GI is going to review my CTs and talk with radiologists and a surgeon to decide the next step. If it looks like obstructions are at the surgery site, I'll have a scope and probably surgery, but if it's unsure will probably have a pill cam and see where it gets stuck and have that section taken out. *crossing fingers* that they'll actually fix things this time...

More hugs and good luck with the nutritionist.

@Becky - Thanks! I'm sorry, though, you may be facing another surgery :( That's most annoying, especially when it sounds like it could have been preventable. What can you do though? Here's hoping that this time they do fix it properly and that the obstructions stop (I wouldn't wish those on my worst enemies: well, maybe my very worst ones... >_>). *sends a hug*

@ivy - I'm okay. Yesterday was rather a low day for me :/ The afternoon was okay. I had the appointment with the nutritionist, which went largely as I expected. She prescribed me some more Fortisips/Fortijuices, which she has faxed through to my GP. I then stopped at Tesco, picked up two cartons of fresh pumpkin soup, chocolate syrup, tube of primula cheese, and bovril, then sat in Costa Coffee and read on my kindle for an hour. Peaceful. So that was okay. But I managed to massively wind myself up at dinnertime. First, by complaining about Saturday (I have thus reconciled myself to that particular prospect now...). Second, by getting ultra-annoyed with my dad again. He was doing his usual thing of complaining about how poor the meat was. That irritates me at the best of times tbh, and this was not the best of times. I almost snapped at him really badly, but it would have caused a row, so I stalked out of the room instead. I also managed to upset my digestion for many hours with a simple greek yoghurt and (seedless) jam. Pity, as I do actually genuinely really like greek yoghurt with jam/honey/lemon curd :-/

I am finding the liquid diet a lot more difficult this time around; not quite sure why. I think it's because I feel more helpless about the prospect of a long-term fix. At any rate, so I don't sound 100% depressing, only 99%, I do feel better today! I also have the house to myself for a few hours, which is nice :p