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This forum is seriously depressing at the moment

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Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 1/23/2012 8:12 AM (GMT -8)
NCOT just wanted to send you some big hugs! Steroids the meds we love to hate. I so agree with calling your GP for something like Xanax, Klonopin or Valium. I take Xanax and it really helps me during those anxious moments. Quiets things down so I am not so stressed. Hugs!
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 1/23/2012 9:16 AM (GMT -8)
Thanks, Nanners :p ... Haven't seen you around much lately, so I'm hoping that's a good sign. *hugs back*

I'm speaking to my mum again <_<. We did a supermarket shop, where I got a few soups (tomato, chicken), greek yoghurt, chocolate custard (yeah I know :p), and some bananas for making a smoothie with.

I've got an appointment with the dietician tomorrow. I was very dimly aware of this (the appointment was made way back from the first time I was in hospital, which was in October), but it was still a shock when my mum told me it was tomorrow. Not expecting much, but hopefully she'll give me a few Fortisips to take away.

My GP's 2-week leave is apparently starting this week, not next, so I'll have to see if I can see another GP in the meantime... :-/
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Matthew
Veteran Member
Joined : Oct 2004
Posts : 3932
Posted 1/23/2012 4:31 PM (GMT -8)
Not much to say to this, so:

<<<<<<<<HUG>>>>>>>>>

Sincerely,
Matthew

Get well soonest.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 1/23/2012 4:49 PM (GMT -8)
Thank you, Matthew!
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gumby44
Veteran Member
Joined : Nov 2007
Posts : 4505
Posted 1/23/2012 4:57 PM (GMT -8)
Hi NCOT,
I won't let my GI put me on Prednisone without xanax to go with it. I usually only take the xanax at night, unless I'm in big pain, but it definitely helps. I also almost deliberately get quieter and maybe a little more withdrawn when I feel agitated from the Pred so I avoid taking it out on others if I can. I feel so bad for my husband....he looks stressed and tired from all of the months of my being sick. It takes a toll on our loved ones too. I can totally relate to your frustration though. I hope you get feeling better soon!
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 1/23/2012 5:35 PM (GMT -8)
The Pred twitchiness seems to come and go with me. I was ready to bite my dad's head off in the car on the way to the supermarket today, although I bit my tongue instead. To be fair, though, it's hard to tell what is the effect of the Pred or what is simply my own natural irritability <_<. I do like the extra energy that I get from a high dose of Pred, however. It's subtle rather than blatant, but it does mean I can do stuff like post on forums again (lucky HW :p)

And yeah: I can understand feeling bad on behalf of your husband :-/ I feel bad on behalf of my parents, especially when I'm in hospital and they visit me every day. It's a fairly gruelling drive and it's not easy on them at their age.
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Somedude
Veteran Member
Joined : Jul 2011
Posts : 3393
Posted 1/23/2012 5:38 PM (GMT -8)

NiceCupOfTea said...
The Pred twitchiness seems to come and go with me. I was ready to bite my dad's head off in the car on the way to the supermarket today, although I bit my tongue instead. To be fair, though, it's hard to tell what is the effect of the Pred or what is simply my own natural irritability <_<. I do like the extra energy that I get from a high dose of Pred, however. It's subtle rather than blatant, but it does mean I can do stuff like post on forums again (lucky HW :p)
.

What did your dad do?
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 1/23/2012 5:47 PM (GMT -8)
Ah, nothing bad. Really, it's embarrassingly trivial. He just managed to miss a traffic light and we had quite a long wait until it turned green again, so he started to complain about that. I said with extreme irritation under my breath, "stop whinging!".

I suspect it was down to a mixture of 'roid rage and dysfunctional family dynamics...
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Becky77
Veteran Member
Joined : Dec 2005
Posts : 1768
Posted 1/24/2012 8:25 PM (GMT -8)
Boy do I understand the guilt of having to have my parents take care of me. I don't know what I'd do without my parents...both emotionally and financially since they pick up the slack when I can't work. I feel like such a burden to them, but what can ya do?

I also have some hormonal issues (can't be on birth control to regulate them) so I have some severe mood swings, so I completely understand overreacting and not knowing whether it's the hormones or just regular irritability.

BTW, went to my GI today and may be facing another surgery soon. He wants to do a scope and see if the scar tissue is inside the intestines. Basically my surgeon should probably have done a resection but just cleared scar tissue outside the intestines and thought they looked good from the outside. My GI is going to review my CTs and talk with radiologists and a surgeon to decide the next step. If it looks like obstructions are at the surgery site, I'll have a scope and probably surgery, but if it's unsure will probably have a pill cam and see where it gets stuck and have that section taken out. *crossing fingers* that they'll actually fix things this time...

More hugs and good luck with the nutritionist.
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ivy6
Elite Member
Joined : Sep 2005
Posts : 10404
Posted 1/24/2012 10:47 PM (GMT -8)
Sounds complicated, Becky. How do you feel about it all?

NCOT, I hope you're ok. It concerns me that you haven't been here today.

Ivy.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 1/25/2012 5:29 AM (GMT -8)
@Becky - Thanks! I'm sorry, though, you may be facing another surgery :( That's most annoying, especially when it sounds like it could have been preventable. What can you do though? Here's hoping that this time they do fix it properly and that the obstructions stop (I wouldn't wish those on my worst enemies: well, maybe my very worst ones... >_>). *sends a hug*

@ivy - I'm okay. Yesterday was rather a low day for me :/ The afternoon was okay. I had the appointment with the nutritionist, which went largely as I expected. She prescribed me some more Fortisips/Fortijuices, which she has faxed through to my GP. I then stopped at Tesco, picked up two cartons of fresh pumpkin soup, chocolate syrup, tube of primula cheese, and bovril, then sat in Costa Coffee and read on my kindle for an hour. Peaceful. So that was okay. But I managed to massively wind myself up at dinnertime. First, by complaining about Saturday (I have thus reconciled myself to that particular prospect now...). Second, by getting ultra-annoyed with my dad again. He was doing his usual thing of complaining about how poor the meat was. That irritates me at the best of times tbh, and this was not the best of times. I almost snapped at him really badly, but it would have caused a row, so I stalked out of the room instead. I also managed to upset my digestion for many hours with a simple greek yoghurt and (seedless) jam. Pity, as I do actually genuinely really like greek yoghurt with jam/honey/lemon curd :-/

I am finding the liquid diet a lot more difficult this time around; not quite sure why. I think it's because I feel more helpless about the prospect of a long-term fix. At any rate, so I don't sound 100% depressing, only 99%, I do feel better today! I also have the house to myself for a few hours, which is nice :p
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Crohn'snme
Veteran Member
Joined : Feb 2007
Posts : 736
Posted 1/25/2012 3:08 PM (GMT -8)
I have to agree, I leave the forum for a while and then come back. I can be depressing, but it's nice to know others are there for you.
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