I am asking this question for my cousin who has crohns but does not have a computer but wanted to know some information. He is 40 and was diagnosed with mild crohns in the illium about 7 years ago. He started out on 1000mg 4 times a day, then after about two years of being symptom free, they dropped him to 500mg pentassa 3 times a day , and he never had a symptom or a flare until last year.
about a year ago, he started having bouts of severe pain in the area of the illium that would last for a few hours maybe one or two times every few months, then nothing. This went on for about a year and he thought it was just something he was eating and ignored it. He had no other symptoms like D or vomiting and his BMs were 100% normal, no blood or mucus. Then the week before Xmas he started having severe pain in the illium area, and this time it didn't go away and got worst. Also he had fevers and night sweats, he could actually start to feel a lump in that area when he touched it and it was very painful to touch. He went in the hospital and had a CT scan and they found a massive area of inflammation around the illium and admitted him and put him on intervenus steriods and antbiotics. Within 12 hrs, all the pain had gone away completely, and after two days he was discharged. They put him on 40mg steriods a day plus 1000mg pentassa 4 times a day. Today, 2 1/2 weeks after being discharged, he feels 100% better, no more pain, no fevers, BMs normal , and he is also slowly progressing off the steroids. Now he is at 20mg. He still feels a lump in his illium area but it is not painfull to touch as before.
A couple of days ago he had another CT and the results came back showing the size of the inflammation has not decreased one bit. It has not got bigger, but it has not decreased. Because my cousin has no other symptoms like D or blood in the BMs, no fevers, the GI wants to wait one more month and have another CT, and if there is no change then, he wants my cousin to see a surgeon. The GI also wants to put him on Humira which my cousin is strongly dead set against because of the cost and the possible side affects and also how it is administered by injection.
The question is?
Has anyone had a inflammation in the illium like this where you can feel a lump when you touch it, but have no other symtoms?
How long does it take for this type of inflammation to go away?
If it is such a massive inflammation as the CT shows, then why are there no other symptoms like D, or blood and mucus in the stools, or vomiting, etc ?
Could this be a stricture? What are the symtoms of a stricture?
Which has the worst side affects long term use of Humira or long term use of steroids?
Has anyone used humira and what are your experiences with it?
Post Edited (NY-Sooner) : 1/25/2012 8:26:01 AM (GMT-7)