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Scar tissue

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Crohn's Disease
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dorri
Veteran Member
Joined : Feb 2003
Posts : 2027
Posted 1/31/2012 3:28 PM (GMT -7)
As I have posted before I have a long segment of intestinal scar tissue.  The doctor told me that 3 years ago and I asked if I could hold off on the surgery.  I did have a small bowel resection in 2003.

I don't have a lot of pain atleast not like I did before my surgery.

However, I do have a lot of discomfort and having a lot of gastric symptoms, nauseau, cramping and bloating, acid back up and flat stools, etc.  But then again they were like this before my surgery and remain after the surgery but maybe more so now.  I am thinking the scar tissue is getting worse but does this sound like scar tissue symptoms? 

Since last fall my symptoms are increasing.  I guess I will have to make an appointment in the next month or so and have the doctor check it out

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kazbern
Veteran Member
Joined : May 2010
Posts : 8384
Posted 1/31/2012 3:36 PM (GMT -7)
Would it be worthwhile to try out a gluten-free diet for a couple of weeks? How are you treating your Crohn's at the moment? Some of the issues you describe (nausea, cramping, gas) don't sound like scar tissue problems.
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dorri
Veteran Member
Joined : Feb 2003
Posts : 2027
Posted 1/31/2012 4:30 PM (GMT -7)
Still on a maintenance dose of prednisone but they are working on trying to get me off. I've been on it for years. Can someone tell me how the scar tissue got there if it wasn't inflamed at one time?

No I haven't tried the gluten free diet. Too bad it can't help dissolve scar tissue so I wouldn't have to have surgery to get more intestine removed.
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kazbern
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Joined : May 2010
Posts : 8384
Posted 1/31/2012 7:14 PM (GMT -7)
I think the scar tissue must be from something that was once inflamed, or perhaps it's left over from some surgery.

You really must get off pred. You need to take another kind of maintenance med now.
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dorri
Veteran Member
Joined : Feb 2003
Posts : 2027
Posted 2/1/2012 4:19 PM (GMT -7)
I've been on prednisone for way too long. The rhematologist thinks my adrenal gland fell asleep so put me on a maintanance dose of 5 mg. This past fall I tried weaning to 3/4 of 5 mg and for the last 2 months am on 1/2 of the 5 mg but I have been so sick picking up everything since and wonder if cutting back on the pred has anything to do with it?
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Nanners
Elite Member
Joined : Apr 2005
Posts : 14996
Posted 2/2/2012 12:05 PM (GMT -7)
Everyone develops some scar tissue at the reconnection site. Sometimes you get inflammation in there that heals, and what does it do? It creates more scar tissue.

I suggest seeing your doc and getting some tests run to see whats going on in there. My second resection was because of scar tissue build up that caused me to obstruct again. They thought when going in there that it was just scar tissue, but after the pathologists looked at it, they found active CD in there too.

Are you taking any maintenance meds other than the Pred? If not, this could be why your CD is returning. Good luck!
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dorri
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Joined : Feb 2003
Posts : 2027
Posted 2/2/2012 7:47 PM (GMT -7)
Thanks, for the last 3-4 years I've been going back for regular tests. Only this last year I missed because I was feeling pretty much the same and the tests the year before showed no change with the long segment of scar tissue, so I figured I would spare myself some radiation for a few extra months. I realize that I do have to go in soon and have the GI check and do the tests again.
Prednisone has been my only treatment since the resection in 2003. Up till a couple of years ago I was feeling pretty good. The GI said the scar tissue was in the surgical site. How can a long segment be in a surgical site. I have asked the doctor what they mean by a long segment, he says they don't say, it's just on the report as a long segment, so I'm taking that it's from the surgical site up to the patch of crohn's they left behind. Apparently when they did the resection, the patch was up further and they didn't want to remove healthy bowel to get to it so they left it.. I've been on Remicade and 6MP in the past which I didn't do well on either. The doctor took me off. The GI took me off prednisone as well after the surgery but I had terrible unexplainable pain and stiffness. The Rheumy felt it was because I was on long term prednisone and my gland was asleep so he put me back on to 5 mg.
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