Posted 2/19/2012 6:50 PM (GMT -7)
All this advice is good! I myself have been diagnosed with IBS since I was a child. The doctors didn't look farther into it which caused me to do more damage to my intestines than helping them when what I thought I was doing was good and what the doctor TOLD me to do...well, I just became accustomed to living with diarrhea all the time, vomiting, not eating much never hungry, and skinny and always in pain and feeling crapty. I just thought that was how life was...so I myself became self-medicating since I have been 14 and it has led me to be very upset with the person I have become, but what does a person do, when the docs won't prescribe anything for pain...I don't even ask them twice because then they will get it into their head that I could be a med-seeker. I know this because I worked at a clinic and once a patient is listed as that, they are automatically treated with the utmost disrespect I could have imagined! That makes me so scared to even tell my doctor the whole truth...that I have a LOT of pain and I do have to find it elsewhere due to not being able to be comfortable enough to ask for pain relievers. I am currently on Remicade Infusions every six weeks and that has been about 3 yrs. now...it helped that bowel movements quite a bit ecpecially at first...I had tried so many meds but nothing worked until we tried Remicade so I was really happy/sad at the same time that I knew what was wrong finally and that I had something I could actually do about it...but ya know its kind of a double edged sword in a way...kill my immune system so I can pick up any virus or bacterial infection around or NOT kill my immune system and have it destroy my colon and live in more pain. It really IS FRUSTRATING, I AGREE!! Right now, I am taking Remicade(infliximab) infusions, lomotil (as needed for diarrhea), dulcolax (as needed for constipation), zofran for nausea, clonazepam for anxiety, imitrex for migraines along with inderal for blood pressure...I just got out of the hospital due to having (2) gran mal siezures, which is still unknown why and I was throwing up for (3) days before I went into the ER. My boyfriend keeps saying that I fake the pain so he wouldn't take me for the longest time, well finally I talked him into it and I stood up to go and put some better clothes on and I guess he said that I stood straight and stiff and threw my head back and giggled really wierd, then flew onto my coffee table and started siezing and foaming at the mouth and everything...ambulance was there in (3) minutes I guess...then I got to the ER and I woke up again and there were siezure mats on my railings of my hospital bed and they said that I had just had another siezure...well, anyway, i remained in the hospital for (4) days, they ran tests including an MRI, CT Scan, EEG, blood tests and whatever else they needed. Well, my MRI came back with some bad news...I just found this out so I am very nervous about it so if anyone has had a similar thing happen please..just let me know what you think my chances are that it is bad...well, anyways what it is, is a (5) mm leasion on my brain! SCARY!! So now I have a neurologist that I see, it is just like "WHATS NEXT???" But I can't say that because each day I wake up I am blessed but I want to find some people that may share the same frustrations that I am feeling...my boyfriend CANNOT relate at ALL!!! He is pretty much an ****** and it is coming near the end of our (11) year relationship...he is tired of taking care of me he says...I have a bachelor's degree in Teaching Spanish but I don't want to take a job until I know for a FACT that I won't **** that up too, just like the rest of my life already...He also wants to have children, but doesn't even take into consideration how hard that would be on MY body, yes I can have children, but I can barely take care of myself let alone a child, so I am about (30) years old so I guess you could say I am at the age that you need to decide and he has been putting pressure on me about it...I am going with my heart on this one and siding with my health and my sanity over a child. Sorry if it sounds selfish it's just the way I feel I guess.
I am ALWAYS in pain...now I have tried many things but I have a friend that is an addict and to get him through the day and take the opiate withdrawls away is a pill called suboxone. It dissolves under one's tongue so it doen't have to go through my intestines, due to the fact I have such bad nausea so that is interesting...then I read an article about doctors using this medicene to treat Crohn's disease because for non-addicts, I guess it is a pain med of some sort, but awesomely not a narcotic. I need to be able to function on a day to day basis and be energized and happy in order to have a normal life or well as normal as it can be, but ya know what I mean...I guess i am just looking for some input and if you have heard of this suboxone before that would be cool if you could give me some information! That would be awesome! I also don't have ANY friends or family that have Crohn's disease so I don't have ANYONE to relate to, so I think I am going to put my faith into this site and hope that it brings me together with some people I can relate to. Well, tell me what ya think about my situations like if you have any suggesstions or whatnot. Thanks