gdispce- Yes my son is such a little sweetie. Today is his birthday and he wanted to go to the park. Since he is homeschooled we decided to go after lunch. We were there about
10 minutues and he said Mom can we just go home please I am so tired
So we went home. Its so hard because he has always been such an active boy.
He is a little over weight which is good to a certain point I guess since he lost 5 pounds over night when he was sick but it makes it hard with the steroids and him always feeling hungry. We started a multi vitamin after getting it okay with his kidney doctor. We havent tried the boost with him but my daddy had to drink it when I was taking care of him when he was fighting lung cancer.
We start to wean down his steriod tomorrow. We had first round of lab work yesterday and the GI nurse called today and said everything was normal and to continue the 6mp.
Give your sweet son and extra hug for me.
Thanks everyone for all the support. It means so much