Hello, I have not been on here in a very long time. I had a total colectomy in Feb of 10, they could not figure out why I always had so much air and illius in my intestines daily. So since I had my surgery did ok for like 4 mons...then went back to all the air stuff.
Well finally my new gastro doc did a endoscopy and I have gastroparaesis really bad. Im sick every day with all the burning and sour taste in my mouth, and now I have a stomach and sm intestines that no longer work 99 % of the time. So put me on Reglan that did not work now for 2 mo he has had me on erythomicin 3 x day for 2mos now and it quit working like a mo. ago.
So I am just at the end of my rope does anyone have this? He said that he is running out of med options so all that remains is a drastic surgery, and I don't want that.
If anyone has any ideas for me plz help, I really thought that my huge surgery the Total Colectomy was the ans to getting my life back, but its been horrible, I maybe have 2 good days a mo. I am back to not eating again if that's what it takes to get my doc to help me.
I starved myself the first time before I had my surgery and lost 138 lbs in a yr...so im 124, cant gain and everything I eat makes me sick...I don't know what to do anymore???