a year ago today (27th) I woke up at home, for the previous week I had been at the hospital after a month of uncertainty, weakness, anemia, heart palps, bowel issues, etc. I had been diagnosed with Crohns about
3 days previous. It was a complete shock as it all happened so fast.
While doing research I came across this site by pure chance. I needed support and I got it. The first couple months were an absolute nightmare, the prednisone really jacked with me. Then in August I had a severe reaction to Imuran which landed me in the hospital for a total of 9 days. Sepsis, kidney failure and followed by Pancreatitis. It certainly wasn't my year. I started Remicade in November and reading about it's potential side effect scared me. But I've done well on it so far, 6 infusions in.
In April I finally got off the pred, and I returned to normal... the pred was doing worse things to me than my crohns ever has. I would consider myself in remission right now. The only problem I have now is being obese, I sat in pity and let inactivity take its toll.
I write this because I know there are people coming here who are where I was a year ago. Angry, in disbelief, unsure of how to deal with it all. I couldn't picture myself being better, but here I am just a year later doing great. The ride has been scary at times but it got better, I'm confident that once I force myself to get of my butt and get more active I can go back to my job and return to the life I've put on hold.
33 - DX 06/23/11 with Crohns Ilecolitis
Meds - Remicade, Xanax, Zoloft, Prilosec, Coreg, Lisinopril, Lasix, Klor Kon
Drug Allergy to Imuran - Sepsis / Renal Failure / Pancreatitis
Crohn's seems to be doing ok, currently dealing with edema in ankles and feet.