I don't think a lot of people know anything beyond the 5-ASAs, 6MP/AZA and Remicade/Humira, but there do seem to be a few meds beyond those. I'm struggling to remember what my consultant listed now: think cyclosporine was one of them. Plus something with numbers in (really helpful, that), and one or two other things - I'm usually good at remembering names, but they've gone clean out of my mind now. Anyway, they would be immunesuppressants of some sort, no doubt.
Plus there's the anti-MAP antibiotics I mentioned, as well as LDN (Low Dose Naltrexone), the latter of which genuinely works differently by boosting the immune system, oddly enough. It does have one small but promising study for Crohn's patients behind it:www.ncbi.nlm.nih.gov/pubmed/17222320
But GIs have been funny about
LDN for some reason. Most don't like to prescribe it, so you might have to search for one who would agree to.
I'm not surprised Entocort works, because it's a steroid and steroids do work well for Crohn's. Unfortunately they also aren't safe to take long-term. Occasionally folks do become steroid-dependent and end up being on them for years, but the probability of adverse side-effects becomes 100% eventually. Just not something you want to be on for longer than a few months, unless you have literally no other option.
The myopathy sounds unpleasant. I hope it's just a temporary result of the Entocort and disappears soon.