I know this is slightly off topic, but I need any help I can find.
My grandma, who was recently diagnosed with diverticulitis and colon cancer, has a vaginal fistula.
I have a perianal fistula.
I just came back from a 10 day visit with her and she told me that she barely had time to pull down her panties when blood was everywhere.
My aunt described the fluid coming out of her sister as projectile diarrhea. Despite all that, they had to force her to go to the hospital.
In her Southern mind, she doesn't believe that going through chemo and radiation was worth it and would have willingly died with it as all a secret.
They've been treating her with chemo and radiation, but they have not removed her tumor.
She had surgery to treat the fistula and was given a temporary colostomy (some say she should have gone for broke and gotten a permanent one). I for one wish she had just cut everything cancerous all at once and gotten a permanent bag.
Not long after that, she got an infection and had another surgery involving her colostomy. This was all before my visit.
After I saw her on the 6th, the doctors were going to send her home on Wednesday, but her vaginal fistula reopened that day and her discharge plan was cancelled.
It was the worst possible news they could have given her and completely destroyed her morale.
None of the doctors explained to her why it was happening. When we finally cornered one, he blamed it on the radiation and said it reopened the fistula.
Because my grandma's white blood cell count was under 2.0, they kept cancelling her radiation. Her last radiation treatment was on tuesday. This saturday and sunday she had no vaginal discharge, which supports the doctor's theory that the radiation is aggravating the fistula, which they say is the exact same fistula as the one draining heavily in May.
I think she was finally able to have radiation yesterday, but I haven't heard whether or not her fistula is still draining.
But I don't know. I can't shake the feeling that the surgeons messed up the colostomy during those two surgeries.
I'm so freaked out because I know that I'll have to have a surgery to remove my fistula and a colostomy and all that jazz and I never thought that it was possible to go through all that and have it be a total waste.
Has anybody with Crohn's had surgery and a colostomy to deal with a fistula only to have the SAME fistula reopen and drain again?
Should I still go through with that surgery in the future?
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria