WingZero - you are not alone!!! We are all here to listen and offer support.
I've been where you are. I was 34, suffering a year through a major flare, and
would lie on my bed every chance I got, between work and Kid's activities. I
remember one day we had a 2-hour break between my son's baseball tournament
games, and I layed on the bed and thought that if I could just lay there for a
few days, I would die and it would be over. Fortunately, I had my kids to think
of and dragged myself out of bed to take care of their needs. It was a rough
time until I finally had surgery. Like you, I had no one to share with because
no one understood the depths of this disease. People would say how awful
it was that I couldn't eat, while they were eating. I would sit away from
everyone drinking water, wanting to cry. ho hum,.
Please hang in there and make your doctor help you. If he/she isn't doing anything
for you - then get another doctor! Is there a Crohn's support group in your city?