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Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Just venting...sorry, just been a rough day.

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Crohn's Disease
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scifigal2k
Veteran Member
Joined : May 2012
Posts : 3589
Posted 8/21/2012 5:35 PM (GMT -7)
I know you guys have heard a lot from me lately. I'm sorry about that. shakehead

I just need to vent. I'm still in the hospital with pancreatitis and still waiting to figure out what could be causing it and still on a feeding tube into my small bowel and still waiting for my GI to send me to a different hospital to get a scope done that they can't do at this hospital.

The nurse screwed up the doctor's orders yesterday and "pills with clear liquids" meant that I could now take my pills with a sip of water, but she thought it meant I should have a clear liquid diet and gave me broth, jello, etc. Caused MAJOR pain yesterday so they had to up the doses for the night. This morning the IV got infiltrated pretty bad (the fluids go into the tissue instead of the vein), so that whole arm is useless. They blew two veins in the other arm and finally decided to give up and I could just take pain meds in pill form. I've tried to tell them multiple times that my body doesn't do pain pills - THEY JUST DON'T WORK. I finally broke down and took some an hour and a half ago after being in pain all day, and it STILL hasn't kicked in (I hate to say I told them so, but I told them so). PLUS they haven't done anything at all in moving forward with getting me to SLC to the LDS hospital to do a scope that they don't have the abilities to do here.

So in short, pain all day with no relief and I still don't have an IV or a PICC line or anything AND one more wasted day in trying to figure out what is causing the problem in the first place. Maybe I should just check myself out and go home. In pain with no progress for a diagnosis: it's the same whether I'm here or there, and at home I'm not paying 10% coinsurance.

The only positive is that I have a new formula that I seem to tolerate a little better than the other (although not that much) and we've been able to increase the rate to a tiny bit higher than the other one. Oh, and I had nice visit from my sister. She brought me a birthday present - my birthday is this weekend. I turn 26.
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kazbern
Veteran Member
Joined : May 2010
Posts : 8384
Posted 8/21/2012 5:57 PM (GMT -7)
Ugh, scifigal. Sorry this is so hard. Does the hospital you're in have an ombudsman? Anyway to get someone with some pull to just take care of whatever and move you to SLC?
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Bacon Girl
Veteran Member
Joined : May 2011
Posts : 5490
Posted 8/21/2012 7:54 PM (GMT -7)
being in the hospital is so miserable. i was in for a while last august. doctor wants me to go back now but i told him i'll be just as sick at home as i would be there. i really hope they can get an IV in you. my veins always collapse or get infiltrated and then my hand or arm will blow up. IVs are the worst!!! you would be a good PICC line person but those can be scary, too.

i hope you can get out by your birthday! just think that you've been blessed with 26 years almost! that's so magical and i'm sending healing vibes your way.
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dorri
Veteran Member
Joined : Feb 2003
Posts : 2027
Posted 8/21/2012 11:05 PM (GMT -7)
So sorry that you are going through all this. You mention pancreatitis which most likely is a side effect of the Imuran? I have to wonder why you are even on this med if you have the pancreatitis? I do hope that they can get the answers for you, and that you will get better. It's bad enough being in the hospital, but it's even worse when they can't help you with the pain?
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Djin
Regular Member
Joined : Jan 2010
Posts : 269
Posted 8/22/2012 5:15 AM (GMT -7)
Bad nursery team is a curse...

Please, what about trying to check out and change hospital. Heard many histories that this made a difference.

Good luck...
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CrohnieToo
Veteran Member
Joined : May 2003
Posts : 9448
Posted 8/22/2012 9:03 AM (GMT -7)
INsist on the hospital's Patient Advocate coming to see you NOW!

It sounds like the hospital is dragging its feet on the transfer just to protect their income on your stay and don't want to give it up. Like they want to milk you admission and stay for as long as possible.

Ask your doctor who wants this particular scope if he would support an emergency admission at the LDS hospital if you discharge yourself AMA from this hospital and go directly to the LDS ER department. You may not be able to have the desired scope immediately but at least you would be there and hopefully getting better more caring care.
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