First- a big, sincere thanks to all of you who responded. The advice and good thoughts go a long way. I have an appt. to see my GI tomorrow. I have some questions that I hope some of you will comment on before I see him.
1. Rowasa-I have never been on rectal meds. How long would it take before I know if Rowasa is helping me.
2. I have been on Pred. once for about 3 months. I thought it was a wonder drug. What is the difference between Pred and Entocort? Can it be difficult to taper off entocort?
3. Antibiotics-I had c-diff 4 years ago which was followed by a severe Crohn's flair. I have not needed antibiotics since. If I were to take antibiotics, would I have a high risk of getting c diff again?
I am making a list of my symptoms so I don't downplay anything. I might be guilty of that because my gi thinks I'm doing so good.
I also want to be as well informed as possible as to what might help me. I read in another post that we sometimes need to guide our GIs.
If possible I would like to avoid taking stronger drugs at this point.
I will let you know how the appt goes. Again I am so grateful for all the support and advice.