I haven't posted much in the last while as I have had a near death experience but I wanted to respond to your post.
On August 15 I went in for a routine colonoscopy with my GI to have a stricture stretched. The procedure went well according to my dr but unknown to him he perforated my colon. I went back to the hospital the following day and the surgeon on call wanted me to try three days of antibiotics to close the perforation. Meanwhile stool was flooding my stomach, and insides for three days before I was finally rushed into emergency surgery. While I don't remember all of what happened to me, I was on life support and in a medically induced coma for three days while I was pumped full of antibiotics to try to treat all of the infection that had flooded my body. When I finally came out of the coma and was coherent enough to be told what had happened, I was told I have a permanent ilieostomy and that I would have to have more surgery in a year to remove the rest of my colon. I spent the following two weeks in hospital undergoing tests, drain placements to get rid of abscesses caused by all the infection, TPN treatments, IV pic line, all kinds of antibiotics, three Jackson Pratt drain removals and an incision from the bottom of my rib cage to my pubic bone.
No, it wasn't how things were supposed to go and I am still struggling with my sadness and my anger. I was supposed to be on vacation with my family, not in the ICU fighting for my life. There has been more good times than bad since I have come home. My mom has been here for five weeks, my husband and 11 year old daughter have been amazing as we all adjust to our new reality. Having an ostomy has changed my life, right now I am not sure if its for the good or the bad. I know that I don't have any pants that will fit over it so that saddens me as I can't drive for another two weeks to go shopping but I am here, my family is not grieving my death, my daughter still has a mom and in five weeks I am heading to Europe for our 15th wedding anniversary.
No one knows what life has in store for us and those of us with chronic diseases have our strength and faith tested on a daily basis. For me now, I have to learn how to live with the cards I have been dealt. Through prayer, meditation and the love of my family, everyday I feel stronger.
We can deal with this darn disease, we have to. We have to ease the path for those that come after us. I have had this disease for 17 years, I am now 39 and I have a whole lot of living left to do.
As a card given to me in the hospital said "Be the kind of woman who, when your feet hit the floor in the morning, the devil says "Oh no, she's up!"
Post Edited (Larasmom) : 9/23/2012 4:56:43 AM (GMT-6)