My GI referred me to a surgeon (turned out to be the same one that removed my gall bladder in August, which was a useless surgery after al) about
my rectovaginal fistula, since it hasn't healed. It was mostly healed with the Remicade, but the c. diff. a month an a half ago caused extreme diarrhea. This combined with constipation from all of the IV dilauded from numerous hospitalizations for the acute pancreatitis re-
opened it worse than before.
Anyway, the surgeon said he doesn't even want to touch it for fear of flaring the pancreatitis and also because he thinks a specialist (like a colorectal surgeon) would be better. He's going to call around and promised to get me the very best....the couple that he knows about
he thinks are idiots. BUT he said that most likely we would have to do a temporary ileostomy that would last 6-10 weeks depending on how things heal.
Is it worth it? Can it even be fixed? I know that it can be difficult with Crohn's to want to close them, but at the same time I don't want to have things get worse because I was afraid of what MIGHT happen. Right now the pain doesn't get too bad, it hovers about
a 3 or a 4, and it's becoming a bit more frequent. I noticed yesterday some vaginal discharge starting and there was a little bit of pus on the toilet paper after BMs yesterday and today. Two weeks ago when I got really watery, urgent diarrhea just trying to hold it to get to the bathroom, it was pouring out through my vagina. But with solid BMs (which I now have, I am in remission and at 15 mg of pred, should be off completely by the end of next week) it's really fine.
Also, the surgeon recommended I start seeing an infectious disease (ID) doctor since I'm on Remicade. Is it necessary? He mentioned they might start me on Flagyl, but I've had 3 c. diff. flares this year and we now use Vancomycin for it...I finished it this week.
I really liked this surgeon and feel like I can trust him, mostly because he said that if any surgeon ever says this is an easy fix, to run away screaming because they're too arrogant. He also made me laugh when he said, "If I had the authority, I'd put the book of your life next to Job's." I'm always grateful when doctors are sympathetic; it makes me feel validated!
Anyway, anyone have any thoughts or suggestions about
CD 2010, Fistula, Pancreatitis
Prednisone, Imuran, Asacol, and Remicade
"These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world." John 16:33
Post Edited (scifigal2k) : 10/13/2012 6:48:26 PM (GMT-6)