Hello, im new here.
I have been looking for a website so i can talk with people about
my current diagnosis because it troubles me and i dont really understand it at all. I was diagnosed with sarcoidosis a few months ago, well really they just ruled out everything else so its not 100% but they think it is sarcoidosis. I have nodules inside of my kidney's, lungs, abdomen, and diaphragm (somewhere below my lungs) and the way i found out was i went to the doctors about
a stomach ache and they did an xray and found the nodules scattered about
. I have not had any symptoms from the sarcoidosis but the doctors want to get rid of it anyway so it doesnt randomly appear in my brain or my heart or any other important areas. I should also note that i am only 18 so i dont really know anyone my age with sarcoidosis that i can ask these things about
a week ago i was put on prednisone, 60 milligrams a day, 3 tablets throughout the day and i absolutely hate it
but im hoping it might stop the sarcoidosis. The side effects are very scary and i think ill need to call my doctor monday to see if he can put me on a lower dose, ive been having a very strong pulse, burning feeling between the back of my ear and my shoulders, numbness on my head, muscle aches, Kidney pain, and a sort of dizziness and alot of headaches with mood changes. I feel awful after taking this for only a week but i know i have to so i was wondering if anyone in a situation similar to me has had ways of helping the side effects of prednisone be less uncomfortable.
I know this is the Crohn's disease section but i couldnt find anything with sarcoidosis or lung diseases and i read online that people with crohns disease take prednisone.